How to Manage the Suffering of the Patient and the Family in the Final Stage of Life: A Qualitative Study.
Background: The end of life and death have changed from being issues managed within the family, assumed as part of life, to occur within health institutions for the majority of patients. The amount of patients dying at home has decreased, and the roles of families and communities in death and dying...
| Publicado en: | Nursing Reports Vol. 13; no. 4; pp. 1706 - 1721 |
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| Autores principales: | , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
MDPI
Dec2023
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=174474755&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 174474755 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 2039439X EGNT jtl: Nursing Reports issn: 2039439X maglogo: N pubinfo: dt: Dec2023 vid: 13 iid: 4 pid: 97109 pub: MDPI artinfo: ui: 174474755 174474755 174474755 10.3390/nursrep13040141 174474755 ppf: 1706 ppct: 15 formats: fmt: @attributes: type: P tig: atl: How to Manage the Suffering of the Patient and the Family in the Final Stage of Life: A Qualitative Study. aug: au: García-Navarro, E. Begoña Garcia Navarro, Sonia Cáceres-Titos, María José affil: Department of Nursing, University of Huelva, 21007 Huelva, Spain sug: subj: Terminally Ill Patients Psychosocial Factors Family Psychosocial Factors Needs Assessment Suffering Prevention and Control Palliative Care Human Qualitative Studies Descriptive Research Content Analysis Semi-Structured Interview Focus Groups Terminal Care Nursing Homes Gerontologic Care Chronic Disease Phenomenological Research Middle Age Adult Male Female Nonparticipant Observation Thematic Analysis Patient Attitudes Family Attitudes Middle Aged: 45-64 years Adult: 19-44 years Male Female ab: Background: The end of life and death have changed from being issues managed within the family, assumed as part of life, to occur within health institutions for the majority of patients. The amount of patients dying at home has decreased, and the roles of families and communities in death and dying have become involuted, threatening related traditions and knowledge. As a result, a need to promote the end of life at home in this new self-serving society has arisen. In that context, the main objective of this study was to find out what patients and their families need during the end-of-life process in order to feel effectively accompanied at this time. Methods: With that objective, a descriptive qualitative study was conducted via the content analysis of data from semi-structured interviews and focus groups. This research adhered to the COREQ guidelines. The sample consisted of 36 informants selected via intentional sampling of family members and patients integrated into the Comprehensive Palliative Care Process (PAI Paliativos). Results: The results suggest the existence of several common needs such as communication and presence, including the conspiracy of silence as an important factor generating suffering for both. However, there are specific needs such as autonomy, dignity, and respect for patients, which must be taken into account. Conclusions: The results of this study will allow us to establish intervention strategies for effective accompaniment of patients' family members at the end of life and the avoidance of ethnocentrism in this process. This study was retrospectively registered with the (nursrep-1194226) on the (21 April 2023). pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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