Community Participation Challenges for Young Adults with Autism Spectrum Disorders During COVID-19 A Photovoice Study.
Autistic Individuals with or without co-occurring Mental Health Conditions Experience Challenges with Community Participation that can Affect Quality of life. These Challenges Involve, but are not Limited to, Transportation, Finances, Accessibility, Attitude towards Participation, and Infrastructure...
| Published in: | Community Mental Health Journal Vol. 60; no. 1; pp. 60 - 72 |
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| Main Authors: | , |
| Format: | Article |
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Springer Nature
Jan2024
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| Subjects: | |
| Online Access: | View this record in EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ssf&AN=174918736&site=ehost-live header: @attributes: shortDbName: ssf uiTerm: 174918736 longDbName: Social Sciences Full Text (H.W. Wilson) uiTag: AN controlInfo: bkinfo: jinfo: jid: 00103853 CMH jtl: Community Mental Health Journal issn: 00103853 maglogo: N pubinfo: dt: Jan2024 vid: 60 iid: 1 pid: 237 pub: Springer Nature artinfo: ui: 174918736 10.1007/s10597-023-01199-7 ppf: 60 ppct: 12 formats: fmt: – @attributes: type: T – @attributes: type: P size: 1.5MB tig: atl: Community Participation Challenges for Young Adults with Autism Spectrum Disorders During COVID-19 A Photovoice Study. aug: au: Davidson, Amber Pfeiffer, Beth affil: https://ror.org/00kx1jb78 Department of Health and Rehabilitation Sciences, College of Public Health, Temple University, 1913 North Broad, Street, Suite 201G, 19122, Philadelphia, PA, USA https://ror.org/00kx1jb78 Department of Health and Rehabilitation Sciences, College of Public Health, Temple University, 1913 North Broad, Street, Suite 2, 19122, Philadelphia, PA, USA su: Community services Social participation Patient participation Mental health Qualitative research Autism Quality of life COVID-19 pandemic Grounded theory Photography Disease complications sug: subj: Community services Social participation Patient participation Mental health Qualitative research Autism Quality of life COVID-19 pandemic Offices of Mental Health Practitioners (except Physicians) Grounded theory Photography Disease complications keyword: Community Participation COVID-19 HRQoL Mental Health Conditions Photovoice Transportation Community Participation COVID-19 HRQoL Mental Health Conditions Photovoice Transportation ab: Autistic Individuals with or without co-occurring Mental Health Conditions Experience Challenges with Community Participation that can Affect Quality of life. These Challenges Involve, but are not Limited to, Transportation, Finances, Accessibility, Attitude towards Participation, and Infrastructure Issues. COVID-19 Added a new Layer of Community Participation Barriers for all Individuals, Especially Autistic Individuals. The purpose of this study is to understand the perceived community participation barriers and facilitators encountered by autistic individuals during a public health crisis using the Photovoice methodology. The study will compare these perceptions of autistic individuals with and without co-occurring mental health conditions during a public health crisis to determine if any distinctions can be determined. Photovoice, an established qualitative outreach methodology, was the foundation for the methods. Participants completed a narrative answering the question "what is a barrier or facilitator to your community participation?" Data were analyzed using grounded theory. Seventeen autistic participants with a mean age of 23 completed the Photovoice study. Eleven (65%) reported at least one co- occurring mental health condition. Data analysis resulted in two major themes COVID-19 and Transportation; and six subthemes access, safety, technology, leisure, shared experiences, and sensory. Autistic individuals with and without co-occurring mental health conditions chose to identify barriers more than facilitators. Participants without co-occurring mental health conditions viewed COVID-19 as a facilitator almost twice as often as those without. Participants with co-occurring mental health conditions reported transportation more as a barrier than those without. In this study conducted during COVID-19 regulations, autistic individuals identified COVID-19 and transportation as the primary barriers to community participation. COVID-19 was identified as both a barrier and a facilitator. Autistic individuals identified that COVID-19 enabled more on-line participation. Autistic individuals with co-occurring mental health conditions can experience a greater increase in symptoms when daily routines and participation are affected. Disruption and changes in participation for the autistic community during the COVID-19 pandemic can have future implications on this population's ability to reintroduce themselves into community participation. Identified facilitators; technology, shared experiences, and leisure are useful tools to combat the participation barriers. pubtype: Academic Journal doctype: Article src: R language: English refInfo: copyright: @attributes: flag: N holdings: @attributes: islocal: N |
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