Palliative Care for Newborns in India: Patterns of Care in a Neonatal Palliative Care Program at a Tertiary Government Children's Hospital.
Neonatal palliative care is a specialized area within children's palliative care, which focusses on the needs of infants with life-limiting or life-threatening conditions. Nearly one quarter of global neonatal deaths occur in India, where neonatal palliative care evidence is limited. This study desc...
| Publicado en: | Health Services Insights pp. 1 - 9 |
|---|---|
| Autores principales: | , , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Sage Publications Inc.
1/23/2024
|
| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=175009979&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 175009979 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 11786329 B10H jtl: Health Services Insights issn: 11786329 maglogo: Y pubinfo: dt: 1/23/2024 pid: 344 pub: Sage Publications Inc. place: Thousand Oaks, California artinfo: ui: 175009979 175009979 175009979 10.1177/11786329231222858 175009979 ppf: 1 ppct: 8 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Palliative Care for Newborns in India: Patterns of Care in a Neonatal Palliative Care Program at a Tertiary Government Children's Hospital. aug: au: Ishak Tayoob, Mohammad Rayala, Spandana Doherty, Megan Singh, Hima Bindu Alimelu, Madireddy Lingaldinna, Swapna Palat, Gayatri affil: Pain Relief and Palliative Care Society, Hyderabad, India sug: subj: Palliative Care In Infancy and Childhood Tertiary Health Care Intensive Care, Neonatal Hospitals, Pediatric India Hospitals, Public Program Development Program Evaluation Program Implementation India Infant, Newborn Pilot Studies Pediatricians Nurses Counselors Referral and Consultation Disease Attributes Morphine Therapeutic Use Intensive Care Units, Neonatal Terminal Care Qualitative Studies Quantitative Studies Implementation Science Resource-Limited Settings Retrospective Design Record Review Health Services Accessibility Data Analysis Software Descriptive Statistics Infant, Newborn: birth-1 month ab: Neonatal palliative care is a specialized area within children's palliative care, which focusses on the needs of infants with life-limiting or life-threatening conditions. Nearly one quarter of global neonatal deaths occur in India, where neonatal palliative care evidence is limited. This study describes the development and implementation of a neonatal palliative care program within a neonatal intensive care unit (NICU) at a government hospital, describing the implementing an 8-month pilot palliative care program for neonates, including the patterns of care, and barriers and enablers of success. The hospital-based palliative care team included trained pediatric palliative care physicians, a nurse, and a counselor. There was a steady increase in monthly referrals. There were 110 referrals in total, including 89 (81%) deaths and 18 (16%) babies were alive at the time of final follow-up, 10 months after the pilot program was completed. The program addressed physical symptoms, including providing morphine, as well as psychosocial and spiritual concerns of families. A model of hospital-based palliative care for neonates can be implemented within NICUs in tertiary government hospitals in India. Neonatal palliative care programs should include partnerships with charitable organizations to support implementation costs and provide palliative care training, mentorship, and capacity-building support. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
|---|