A randomized controlled trial to assess the impact of psychoeducation on the quality of life of parents with children with congenital heart defects—Quantitative component.

Purpose: To develop, implement and assess the results of psychoeducation to improve the QoL of parents with CHD newborns. Methods: Participants were parents of inpatient newborns with the diagnosis of non‐syndromic CHD. We conducted a parallel RCT with an allocation ratio of 1:1 (intervention vs. co...

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Publicado en:Child: Care, Health & Development Vol. 50; no. 1; pp. 1 - 18
Autores principales: Rodrigues, Marisa Garcia, Rodrigues, José Daniel, Moreira, Jorge Antunes, Clemente, Fátima, Dias, Cláudia Camila, Azevedo, Luís Filipe, Rodrigues, Pedro Pereira, Areias, José Carlos, Areias, Maria Emília
Formato: research tables/charts randomized controlled trial Journal Article
Publicado: Wiley-Blackwell Jan2024
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Jan2024
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      pub: Wiley-Blackwell
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        10.1111/cch.13199
        175014675
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        atl: A randomized controlled trial to assess the impact of psychoeducation on the quality of life of parents with children with congenital heart defects—Quantitative component.
      aug:
        au:
          Rodrigues, Marisa Garcia
          Rodrigues, José Daniel
          Moreira, Jorge Antunes
          Clemente, Fátima
          Dias, Cláudia Camila
          Azevedo, Luís Filipe
          Rodrigues, Pedro Pereira
          Areias, José Carlos
          Areias, Maria Emília
        affil: Department of Pediatric Cardiology, University Hospital Center of São João (CHUSJ), Porto, Portugal
      sug:
        subj:
          Heart Defects, Congenital Diagnosis
          Parents Education
          Quality of Life
          Quality Improvement
          Psychoeducation
          Program Development
          Program Implementation
          Program Evaluation
          Outcomes of Education Evaluation
          Human
          Male
          Female
          Randomized Controlled Trials
          Multimethod Studies
          Inpatients
          Control Group
          Infant, Newborn
          Questionnaires
          Funding Source
          Infant, Newborn: birth-1 month
          Male
          Female
      ab: Purpose: To develop, implement and assess the results of psychoeducation to improve the QoL of parents with CHD newborns. Methods: Participants were parents of inpatient newborns with the diagnosis of non‐syndromic CHD. We conducted a parallel RCT with an allocation ratio of 1:1 (intervention vs. control), considering the newborns, using mixed methods research. The intervention group received psychoeducation (Parental Psychoeducation in CHD [PPeCHD]) and the usual routines, and the control group received just the regular practices. The allocation concealment was assured. PI was involved in enrolling participants, developing and implementing the intervention, data collection and data analysis. We followed the Consolidated Standards of Reporting Trials (CONSORT) guidelines. Results: Parents of eight newborns were allocated to the intervention group (n = 15 parents) and eight to the control group (n = 13 parents). It was performed as an intention‐to‐treat (ITT) analysis. In M2 (4 weeks), the intervention group presented better QoL levels in the physical, psychological, and environmental domains of World Health Organization Quality of Life instrument (WHOQOL‐Bref). In M3 (16 weeks), scores in physical and psychological domains maintained a statistically significant difference between the groups. Conclusions: The PPeCHD, the psychoeducational intervention we developed, positively impacted parental QoL. These results support the initial hypothesis. This study is a fundamental milestone in this research field, adding new essential information to the literature.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        randomized controlled trial
        Journal Article
      ougenre: Article
    language: English
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