And what about today? Burden and support needs of adolescent childhood cancer survivors in long‐term follow‐up care—A qualitative content analysis.
Purpose: Childhood cancer affects approximately 2000 children annually in Germany, and there is an increasing number of long‐term childhood cancer survivors. Due to developmental tasks, adolescent survivors in long‐term follow‐up (LTFU) care may face specific challenges and perceive different burden...
| Publicado en: | Child: Care, Health & Development Vol. 50; no. 1; pp. 1 - 12 |
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| Autores principales: | , , , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Wiley-Blackwell
Jan2024
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=175014683&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 175014683 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 03051862 6NX jtl: Child: Care, Health & Development issn: 03051862 maglogo: Y pubinfo: dt: Jan2024 vid: 50 iid: 1 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 175014683 174170907 175014683 175014683 10.1111/cch.13207 175014683 ppf: 1 ppct: 11 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: And what about today? Burden and support needs of adolescent childhood cancer survivors in long‐term follow‐up care—A qualitative content analysis. aug: au: Winzig, Jana Inhestern, Laura Sigmund, Désirée Paul, Verena Hail, Lesley‐Ann Rutkowski, Stefan Escherich, Gabriele Bergelt, Corinna affil: Department of Medical Psychology, University Medical Center Hamburg‐Eppendorf, Hamburg, Germany sug: subj: Childhood Neoplasms Cancer Survivors Psychosocial Factors Neoplasms Health Care Delivery Methods Health Services Needs and Demand Support Groups Long Term Care Cancer Patients Human Male Female Child Adolescence Adult Germany Qualitative Studies Content Analysis Prospective Studies Semi-Structured Interview Quality of Life Nursing Care Plans Stress, Psychological Psychosocial Factors Interpersonal Relations Survivorship Descriptive Statistics Funding Source Child: 6-12 years Adolescent: 13-18 years Adult: 19-44 years Male Female ab: Purpose: Childhood cancer affects approximately 2000 children annually in Germany, and there is an increasing number of long‐term childhood cancer survivors. Due to developmental tasks, adolescent survivors in long‐term follow‐up (LTFU) care may face specific challenges and perceive different burden due to their disease. The current study explored (a) the impact of cancer and burden regarding survivorship and (b) supportive needs of adolescent childhood cancer survivors in LTFU care. Methods: Semistructured qualitative interviews were conducted with 18 adolescent childhood cancer survivors in LTFU care aged 14–18 years (average age 16.4 years). Interviews were transcribed verbatim and analysed using content analysis. Results: Based on the exploratory research questions, two key categories were generated: (1) The impact and burden on survivors' lives during LTFU care and (2) support needs of adolescent childhood cancer survivors in LTFU care. The four subcategories that emerged regarding the impact and burden on survivors' lives during LTFU care were (1) physical consequences, (2) cognitive impairments, (3) difficulties in social interactions, and (4) psychosocial burden. Additionally, two subcategories, (1) practical and (2) emotional support needs of adolescent childhood cancer survivors were identified. Conclusions: Our results indicate that childhood cancer influences adolescent survivors' life in a negative way even many years after the end of treatment. Furthermore, parents seem to play a crucial role in the survivorship experience of childhood cancer survivors, as they remain keep responsible for most cancer‐related concerns even during LTFU care, causing adolescents to persist in the child role. A family systemic approach to care is suggested to facilitate development‐specific tasks and to enable adolescents to become autonomous adults. Still, the question remains as to who in the health care system could take over the family systemic tasks. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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