Diagnostic services for developmental coordination disorder: Gaps and opportunities identified by parents.

Background: Affecting one in 20 children, Developmental Coordination Disorder (DCD) is a common neurodevelopmental disorder impacting a child's ability to learn motor skills. Despite its high prevalence, DCD is under‐recognized and under‐diagnosed, causing unnecessary frustration and stress for fami...

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Publicado en:Child: Care, Health & Development Vol. 50; no. 1; pp. 1 - 10
Autores principales: Klein, Erin S., Licari, Melissa, Barbic, Skye, Zwicker, Jill G.
Formato: research tables/charts Journal Article
Publicado: Wiley-Blackwell Jan2024
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Jan2024
      vid: 50
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      pub: Wiley-Blackwell
      place: Malden, Massachusetts
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        10.1111/cch.13230
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        atl: Diagnostic services for developmental coordination disorder: Gaps and opportunities identified by parents.
      aug:
        au:
          Klein, Erin S.
          Licari, Melissa
          Barbic, Skye
          Zwicker, Jill G.
        affil: Graduate Programs in Rehabilitation Sciences, University of British Columbia, Vancouver, Canada
      sug:
        subj:
          Motor Skills Disorders Diagnosis
          Parental Attitudes
          Patient Navigation Evaluation
          Health Services Accessibility
          Motor Skills Disorders Familial and Genetic
          Funding Source
          Human
          Parents
          British Columbia
          Cross Sectional Studies
          Surveys
          Early Diagnosis
          Early Childhood Intervention
          Health Personnel
          Professional Knowledge
          Family Centered Care
      ab: Background: Affecting one in 20 children, Developmental Coordination Disorder (DCD) is a common neurodevelopmental disorder impacting a child's ability to learn motor skills. Despite its high prevalence, DCD is under‐recognized and under‐diagnosed, causing unnecessary frustration and stress for families who are seeking help for their child. This study aimed to understand how parents procure diagnostic services and their perspectives on needed supports and services to improve early identification and diagnosis of DCD. Methods: Using a multi‐pronged recruitment strategy, we circulated the impACT for DCD online questionnaire to parents of children (<18 years) in British Columbia with suspected or diagnosed DCD. Data were analysed descriptively using medians/interquartile ranges for continuous data and frequencies/percentages for categorical data. Open‐ended questions were analysed using exploratory content analysis. Results: A total of 237 respondent data were analysed. Parents identified poor awareness and understanding of health care professionals and educators regarding aetiology, symptomology, and impacts of DCD, affecting timely access to diagnostic services. Long waitlists were also a barrier that often led families with financial means to procure private diagnostic assessments. Conclusion: A standard of care is needed for streamlined diagnostic services, enabling early identification and early intervention. A publicly funded, family‐centred, collaborative care approach is critical to assess, diagnose, and treat children with this disorder and to mitigate the secondary physical and mental health consequences associated with DCD.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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