Day service cultures from the perspectives of autistic people with profound learning disabilities.

Background: Service culture refers to the practices, views and values within service organisations. Developing positive cultures has been thought imperative to improving social care, though day services and their cultures remain an under‐researched area. For many autistic people with profound learni...

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Publicado en:British Journal of Learning Disabilities Vol. 52; no. 1; pp. 54 - 66
Autor principal: Redmore, Ned
Formato: pictorial research tables/charts Journal Article
Publicado: Wiley-Blackwell Mar2024
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Mar2024
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        atl: Day service cultures from the perspectives of autistic people with profound learning disabilities.
      aug:
        au: Redmore, Ned
        affil: Faculty of Wellbeing, Education and Language Studies, The Open University, Milton Keynes, UK
      sug:
        subj:
          Autism Spectrum Disorder
          Learning Disorders
          Persons with Disabilities Psychosocial Factors
          Day Care
          Quality of Health Care
          Organizational Culture Evaluation
          Patient Attitudes Evaluation
          Severity of Disability
          Human
          Phenomenological Research
          Participant Observation
          Thematic Analysis
          Life Experiences
          Personal Values
          Facility Design and Construction
      ab: Background: Service culture refers to the practices, views and values within service organisations. Developing positive cultures has been thought imperative to improving social care, though day services and their cultures remain an under‐researched area. For many autistic people with profound learning disabilities, day services are the sites at which they orientate their Monday–Friday adult lives and so service cultures are fundamental to the way they experience adulthood. It was thus the purpose of this study to explore day service culture through the perspectives and experiences of this group. Methods: This study took a phenomenological approach involving extended participatory observations with an autistic person with profound learning disabilities at their day service, as well as broader ethnographic work within this context. Data was analysed through theory‐led thematic analysis. Findings: The study found that autistic people with profound learning disabilities contribute their customs and values to service culture in everyday life and that space, time and place were important in this endeavour. It highlighted how these customs and values could be adopted or challenged by the service, its staff and their established culture. Conclusion: It is argued that positive service cultures are ones in which day services acknowledge and respond to the views and values of autistic people with profound learning disabilities. A potential framework is discussed to support services with this aim. Accessible summary: Service culture refers to the views, values and practices within support organisations. Good service cultures can result in positive and fulfilling experiences for service members. Poor cultures can result in experiences of exclusion or neglect.Many autistic people with profound learning disabilities are members of day services throughout adulthood. The cultures that exist have a big impact on them. However, research has not looked at how this group are part of day service cultures.I discuss a study that explored day service culture from the perspectives of autistic people with profound learning disabilities. The research involved spending time with a person from this group at their day service, as well as their peers and support staff.I found that autistic people with profound learning disabilities contribute their views, values and customs to service culture in everyday life. The way they used spaces was an important factor. The service and its staff sometimes helped and sometimes did not.To create positive service cultures, services must find ways to respond to the views and values of their members. I suggest a potential framework that could support this aim.
      pubtype: Academic Journal
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        research
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        Journal Article
      ougenre: Article
    language: English
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