Variation in follow-up for children born very preterm in Europe.

Background Children born very preterm (<32 weeks of gestation) face high risks of neurodevelopmental and health difficulties compared with children born at term. Follow-up after discharge from the neonatal intensive care unit is essential to ensure early detection and intervention, but data on polic...

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Publicado en:European Journal of Public Health Vol. 34; no. 1; pp. 91 - 101
Autores principales: Seppänen, Anna-Veera, Barros, Henrique, Draper, Elizabeth S, Petrou, Stavros, Andronis, Lazaros, Kim, Sungwook, Maier, Rolf F, Pedersen, Pernille, Gadzinowski, Janusz, Pierrat, Véronique, Sarrechia, Iemke, Lebeer, Jo, Ådén, Ulrika, Toome, Liis, Thiele, Nicole, Heijst, Arno van, Cuttini, Marina, Zeitlin, Jennifer, Group, The SHIPS Research
Formato: research tables/charts Journal Article
Publicado: Oxford University Press / USA Feb2024
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Feb2024
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        atl: Variation in follow-up for children born very preterm in Europe.
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        au:
          Seppänen, Anna-Veera
          Barros, Henrique
          Draper, Elizabeth S
          Petrou, Stavros
          Andronis, Lazaros
          Kim, Sungwook
          Maier, Rolf F
          Pedersen, Pernille
          Gadzinowski, Janusz
          Pierrat, Véronique
          Sarrechia, Iemke
          Lebeer, Jo
          Ådén, Ulrika
          Toome, Liis
          Thiele, Nicole
          Heijst, Arno van
          Cuttini, Marina
          Zeitlin, Jennifer
          Group, The SHIPS Research
        affil: Université de Paris Cité, Inserm, INRAE, Centre for Research in Epidemiology and StatisticS (CRESS), Obstetrical Perinatal and Paediatric Epidemiology Research Team (EPOPé) , Paris, France
      sug:
        subj:
          After Care
          Health Policy
          Infant, Premature Europe
          Patient Discharge
          Intensive Care Units, Neonatal
          Healthcare Disparities Europe
          Child Health
          Human
          Europe
          Funding Source
          Questionnaires
          Parents
          Infant, Newborn
          Infant
          Child, Preschool
          Descriptive Statistics
          Mental Disorders Diagnosed in Childhood Risk Factors
          Risk Assessment
          Early Diagnosis
          Early Childhood Intervention
          Health Services Accessibility
          Infant, Newborn: birth-1 month
          Infant: 1-23 months
          Child, Preschool: 2-5 years
      ab: Background Children born very preterm (<32 weeks of gestation) face high risks of neurodevelopmental and health difficulties compared with children born at term. Follow-up after discharge from the neonatal intensive care unit is essential to ensure early detection and intervention, but data on policy approaches are sparse. Methods We investigated the characteristics of follow-up policy and programmes in 11 European countries from 2011 to 2022 using healthcare informant questionnaires and the published/grey literature. We further explored how one aspect of follow-up, its recommended duration, may be reflected in the percent of parents reporting that their children are receiving follow-up services at 5 years of age in these countries using data from an area-based cohort of very preterm births in 2011/12 (N  = 3635). Results Between 2011/12 and 22, the number of countries with follow-up policies or programmes increased from 6 to 11. The policies and programmes were heterogeneous in eligibility criteria, duration and content. In countries that recommended longer follow-up, parent-reported follow-up rates at 5 years of age were higher, especially among the highest risk children, born <28 weeks' gestation or with birthweight <1000 g: between 42.1% and 70.1%, vs. <20% in most countries without recommendations. Conclusions Large variations exist in follow-up policies and programmes for children born very preterm in Europe; differences in recommended duration translate into cross-country disparities in reported follow-up at 5 years of age.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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