Improving shared decision-making about cancer treatment through design-based data-driven decision-support tools and redesigning care paths: an overview of the 4D PICTURE project.
Background: Patients with cancer often have to make complex decisions about treatment, with the options varying in risk profiles and effects on survival and quality of life. Moreover, inefficient care paths make it hard for patients to participate in shared decision-making. Data-driven decision-supp...
| Publicado en: | Palliative Care & Social Practice pp. 1 - 16 |
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| Autores principales: | , , , , , , , , , , , , , , , , , , , |
| Formato: | protocol tables/charts Journal Article |
| Publicado: |
Sage Publications Inc.
2/12/2024
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=175442954&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 175442954 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 26323524 M8AB jtl: Palliative Care & Social Practice issn: 26323524 maglogo: Y pubinfo: dt: 2/12/2024 pid: 344 pub: Sage Publications Inc. place: Thousand Oaks, California artinfo: ui: 175442954 175442954 175442954 10.1177/26323524231225249 175442954 ppf: 1 ppct: 15 formats: tig: atl: Improving shared decision-making about cancer treatment through design-based data-driven decision-support tools and redesigning care paths: an overview of the 4D PICTURE project. aug: au: Rietjens, Judith A. C. Griffioen, Ingeborg Sierra-Pérez, Jorge Sroczynski, Gaby Siebert, Uwe Buyx, Alena Peric, Barbara Svane, Inge Marie Brands, Jasper B. P. Steffensen, Karina D. Romero Piqueras, Carlos Hedayati, Elham Karsten, Maria M. Couespel, Norbert Akoglu, Canan Pazo-Cid, Roberto Rayson, Paul Lingsma, Hester F. Schermer, Maartje H. N. Steyerberg, Ewout W. affil: Conceptualization, Department of Design, Organisation and Strategy, Faculty of Industrial Design Engineering, Delft University of Technology, Delft, The Netherlands sug: subj: Decision Making, Shared Decision Support Techniques Professional Practice, Evidence-Based Oncologic Care Critical Path Decision Making, Ethical Algorithms Implementation Science Data Mining Breast Neoplasms Therapy Prostatic Neoplasms Therapy Melanoma Therapy Breast Neoplasms Prognosis Prostatic Neoplasms Prognosis Melanoma Prognosis ab: Background: Patients with cancer often have to make complex decisions about treatment, with the options varying in risk profiles and effects on survival and quality of life. Moreover, inefficient care paths make it hard for patients to participate in shared decision-making. Data-driven decision-support tools have the potential to empower patients, support personalized care, improve health outcomes and promote health equity. However, decision-support tools currently seldom consider quality of life or individual preferences, and their use in clinical practice remains limited, partly because they are not well integrated in patients' care paths. Aim and objectives: The central aim of the 4D PICTURE project is to redesign patients' care paths and develop and integrate evidence-based decision-support tools to improve decision-making processes in cancer care delivery. This article presents an overview of this international, interdisciplinary project. Design, methods and analysis: In co-creation with patients and other stakeholders, we will develop data-driven decision-support tools for patients with breast cancer, prostate cancer and melanoma. We will support treatment decisions by using large, high-quality datasets with state-of-the-art prognostic algorithms. We will further develop a conversation tool, the Metaphor Menu, using text mining combined with citizen science techniques and linguistics, incorporating large datasets of patient experiences, values and preferences. We will further develop a promising methodology, MetroMapping, to redesign care paths. We will evaluate MetroMapping and these integrated decision-support tools, and ensure their sustainability using the Nonadoption, Abandonment, Scale-Up, Spread, and Sustainability (NASSS) framework. We will explore the generalizability of MetroMapping and the decision-support tools for other types of cancer and across other EU member states. Ethics: Through an embedded ethics approach, we will address social and ethical issues. Discussion: Improved care paths integrating comprehensive decision-support tools have the potential to empower patients, their significant others and healthcare providers in decision-making and improve outcomes. This project will strengthen health care at the system level by improving its resilience and efficiency. Plain language summary: Improving the cancer patient journey and respecting personal preferences: an overview of the 4D PICTURE project The 4D PICTURE project aims to help cancer patients, their families and healthcare providers better undertstand their options. It supports their treatment and care choices, at each stage of disease, by drawing on large amounts of evidence from different types of European data. The project involves experts from many different specialist areas who are based in nine European countries. The overall aim is to improve the cancer patient journey and ensure personal preferences are respected. pubtype: Academic Journal doctype: protocol tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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