Perspectives on How to Implement Developmental Screening and Intervention for Children With Sickle Cell Disease.
Background: Children with sickle cell disease (SCD), a genetic blood disorder, are at increased risk of developmental delays but are not routinely referred to Early Intervention (EI). The study aimed to understand the need for and acceptability and feasibility of screening and providing EI services...
| Publicado en: | Journal of Early Intervention Vol. 46; no. 1; pp. 76 - 94 |
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| Autores principales: | , , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Sage Publications Inc.
Mar2024
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=175500241&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 175500241 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 10538151 0VW jtl: Journal of Early Intervention issn: 10538151 maglogo: N pubinfo: dt: Mar2024 vid: 46 iid: 1 pid: 20732 pub: Sage Publications Inc. place: Thousand Oaks, California artinfo: ui: 175500241 162426819 175500241 175500241 10.1177/10538151231159637 175500241 ppf: 76 ppct: 18 formats: tig: atl: Perspectives on How to Implement Developmental Screening and Intervention for Children With Sickle Cell Disease. aug: au: Hoyt, Catherine R. Erickson, Jeni Luo, Lingzi Varughese, Taniya Han, Tara Housten, Ashley J. King, Allison A. affil: Washington University, St. Louis, MO, USA sug: subj: Anemia, Sickle Cell Diagnosis Anemia, Sickle Cell Therapy Health Screening Methods Early Intervention Methods Implementation Science Diagnosis, Developmental Caregiver Attitudes Evaluation Human Male Female Child, Preschool Adult Multimethod Studies Semi-Structured Interview Thematic Analysis Health Knowledge Healthcare Disparities Child Development Data Analysis Software Descriptive Statistics Funding Source Child, Preschool: 2-5 years Adult: 19-44 years Male Female ab: Background: Children with sickle cell disease (SCD), a genetic blood disorder, are at increased risk of developmental delays but are not routinely referred to Early Intervention (EI). The study aimed to understand the need for and acceptability and feasibility of screening and providing EI services to children with SCD. Methods : Eleven EI partners and eight caregivers of children aged 3 to 5 years with SCD completed semi-structured interviews and short surveys. Results : Three main themes emerged from interviews and surveys: (a) awareness of disparities and moderate caregiver knowledge of child development, (b) high acceptability of screening for EI, and (c) the need for partner education to increase buy-in and feasibility of potential programming. Conclusion : Partners identified a clear need for EI screening and referral for children with SCD and indicated that a future program would be acceptable and feasible. However, education and incentives are needed to encourage providers to change current practice patterns. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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