Involving older adults and unpaid carers in the research cycle: reflections on implementing the UK national standards for public involvement into practice.
Purpose: This paper aims to share how the Centre for Ageing and Dementia Research co-designs research within a national programme of work to improve the lives of older adults and those affected by dementia. Through examples of this work, the authors identify the barriers and enablers to participator...
| Publicado en: | Quality in Ageing & Older Adults Vol. 25; no. 1; pp. 44 - 56 |
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| Autores principales: | , , , , |
| Formato: | research standards tables/charts Journal Article |
| Publicado: |
Emerald Publishing Limited
2024
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=175523217&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 175523217 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 20441827 B752 jtl: Quality in Ageing & Older Adults issn: 20441827 maglogo: N pubinfo: dt: 2024 vid: 25 iid: 1 pid: 465 pub: Emerald Publishing Limited artinfo: ui: 175523217 175523217 175523217 10.1108/QAOA-03-2023-0019 175523217 ppf: 44 ppct: 12 formats: tig: atl: Involving older adults and unpaid carers in the research cycle: reflections on implementing the UK national standards for public involvement into practice. aug: au: Jones, Catrin Hedd Seddon, Diane Algar-Skaife, Katherine Maddock, Carol Green, Stephanie affil: School of Health Sciences, College of Medicine and Health, Bangor University, Bangor, UK sug: subj: Dementia In Old Age Stakeholder Participation Standards Patient Participation Standards Research Subject Recruitment Standards Research, Medical Standards Caregivers Aging Human United Kingdom Funding Source Aged Research Priorities Study Design Communication Leadership Collaboration Dementia Patients Research Personnel Researcher-Subject Relations Aged: 65+ years ab: Purpose: This paper aims to share how the Centre for Ageing and Dementia Research co-designs research within a national programme of work to improve the lives of older adults and those affected by dementia. Through examples of this work, the authors identify the barriers and enablers to participatory approaches and lessons to inform future involvement activities. Design/methodology/approach: This study reflects on implementing the UK National Standards for Public Involvement into practice. Of international relevance, the observations span the research process from research prioritisation and design to research implementation and knowledge exchange. Findings: This study demonstrates the importance of using a relational approach, working toward a common purpose and engaging in meaningful dialogue. Only through offering choice and flexibility and actively learning from one another can co-design lead to synergistic relationships that benefit everyone. Research limitations/implications: Key implications for researchers engaged in patient and public involvement are be receptive to other people's views and acknowledge expertise of those with lived experience alongside those with academic expertise. Training, resources and time are required to effectively support involvement and meaningful relationships. A nominated contact person enables trust and mutual understanding to develop. This is an ongoing collective learning experience that should be embedded throughout the entire research process. Originality/value: This paper demonstrates how the standards are implemented with people who are often excluded from research to influence a national programme of work. pubtype: Academic Journal doctype: research standards tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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