Managing understandings of palliative care as more than care immediately before death: Evidence from observational analysis of consultations.
Background: Evidence suggests that public, and some professional, understandings of palliative care are limited to care provided immediately before death, which contrasts palliative care's scope as care provided across a range of illness stages. Objective: To examine how clinicians manage patients'...
| Publicado en: | Health Expectations Vol. 27; no. 1; pp. 1 - 11 |
|---|---|
| Autores principales: | , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Wiley-Blackwell
Feb2024
|
| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=175641746&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 175641746 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 13696513 EVY jtl: Health Expectations issn: 13696513 maglogo: Y pubinfo: dt: Feb2024 vid: 27 iid: 1 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 175641746 173423419 175641746 175641746 10.1111/hex.13903 175641746 ppf: 1 ppct: 10 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Managing understandings of palliative care as more than care immediately before death: Evidence from observational analysis of consultations. aug: au: Sansone, Holly Ekberg, Stuart Lord, Sarah Stevenson, James Martinez, Katherine Yates, Patsy affil: School of Psychology and Counselling, Queensland University of Technology, Kelvin Grove Queensland,, Australia sug: subj: Palliative Care Physician's Role Patient Attitudes Referral and Consultation Human Male Female Middle Age Aged Aged, 80 and Over Videorecording Analytic Research Australia Qualitative Studies Funding Source Middle Aged: 45-64 years Aged: 65+ years Aged, 80 & over Male Female ab: Background: Evidence suggests that public, and some professional, understandings of palliative care are limited to care provided immediately before death, which contrasts palliative care's scope as care provided across a range of illness stages. Objective: To examine how clinicians manage patients' understandings of palliative care during initial consultations. Design: Initial palliative care consultations were video‐recorded and analysed using conversation analytic methods. Setting/Participants: Consultations were recorded in a specialist palliative care outpatient unit within an Australian public hospital. Participants included 20 newly referred patients and their families, and three palliative care clinicians. Results: During initial consultations, it was observed that specialist palliative care clinicians frequently managed the possibility that patients may understand palliative care as limited to care provided immediately before death. Clinicians used recurrent practices that seemed designed to pre‐empt and contradict patients' possible narrow understandings. When discussing the palliative care inpatient unit, clinicians recurrently explained inpatient care could include active treatment and referred to the possibility of being discharged. These practices contradict possible understandings that future admission to the inpatient unit would be solely for care immediately before death. Discussion: The findings demonstrate that palliative care clinicians are aware of possible narrow understandings of their discipline among members of the public. The practices identified show how clinicians pre‐emptively manage these understandings to patients newly referred to palliative care. Conclusions: These findings highlight scope for greater partnership with teams referring patients to palliative care, to assist patients in understanding the range of reasons for their referral. Patient or Public Contribution: The observational method of conversation analysis provides direct insight into matters that are relevant for patients, as raised in their consultations with clinicians. This direct evidence enables analysis of their lived experience, as it occurs, and grounds analysis in observable details of participants' conduct, rather than interpretations of subjective experiences. The patients' contributions, therefore, were to allow observation into their initial palliative care consultations. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
|---|