Identifying locally actionable strategies to increase participant acceptability and feasibility to participate in Phase I cancer clinical trials.

Background: Recruitment of cancer clinical trial (CCT) participants, especially participants representing the diversity of the US population, is necessary to create successful medications and a continual challenge. These challenges are amplified in Phase I cancer trials that focus on evaluating the...

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Publicado en:Health Expectations Vol. 27; no. 1; pp. 1 - 12
Autores principales: Staras, Stephanie A. S., Wollney, Easton N., Emerson, Lisa E., Silver, Natalie, Dziegielewski, Peter T., Hansen, Marta D., Sanchez, Gabriela, D'Ingeo, Dalila, Johnson‐Mallard, Versie, Renne, Rolf, Fredenburg, Kristianna, Gutter, Michael, Zamojski, Kendra, Vandeweerd, Carla, Bylund, Carma L.
Formato: research tables/charts Journal Article
Publicado: Wiley-Blackwell Feb2024
Acceso en línea:Ver este registro en EBSCOhost
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        atl: Identifying locally actionable strategies to increase participant acceptability and feasibility to participate in Phase I cancer clinical trials.
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          Staras, Stephanie A. S.
          Wollney, Easton N.
          Emerson, Lisa E.
          Silver, Natalie
          Dziegielewski, Peter T.
          Hansen, Marta D.
          Sanchez, Gabriela
          D'Ingeo, Dalila
          Johnson‐Mallard, Versie
          Renne, Rolf
          Fredenburg, Kristianna
          Gutter, Michael
          Zamojski, Kendra
          Vandeweerd, Carla
          Bylund, Carma L.
        affil: Department of Health Outcomes and Biomedical Informatics, University of Florida College of Medicine, Gainesville Florida,, USA
      sug:
        subj:
          Strategic Planning
          Consumer Participation
          Clinical Trials
          Human
          Patient Safety
          Head and Neck Neoplasms
          Qualitative Studies
          Semi-Structured Interview
          Race Factors
          Ethnic Groups
          Content Analysis
          Thematic Analysis
          Professional Knowledge
          Interpersonal Relations
          Life Experiences
          Oncology
          Patient Education
          Descriptive Statistics
          Funding Source
          Adult
          Middle Age
          Aged
          Aged, 80 and Over
          Male
          Female
          Adult: 19-44 years
          Middle Aged: 45-64 years
          Aged: 65+ years
          Aged, 80 & over
          Male
          Female
      ab: Background: Recruitment of cancer clinical trial (CCT) participants, especially participants representing the diversity of the US population, is necessary to create successful medications and a continual challenge. These challenges are amplified in Phase I cancer trials that focus on evaluating the safety of new treatments and are the gateway to treatment development. In preparation for recruitment to a Phase I recurrent head and neck cancer (HNC) trial, we assessed perceived barriers to participation or referral and suggestions for recruitment among people with HNC and community physicians (oncologist, otolaryngologist or surgeon). Methods: Between December 2020 and February 2022, we conducted a qualitative needs assessment via semistructured interviews with a race and ethnicity‐stratified sample of people with HNC (n = 30: 12 non‐Hispanic White, 9 non‐Hispanic African American, 8 Hispanic and 1 non‐Hispanic Pacific Islander) and community physicians (n = 16) within the University of Florida Health Cancer Center catchment area. Interviews were analyzed using a qualitative content analysis approach to describe perspectives and identify relevant themes. Results: People with HNC reported thematic barriers included: concerns about side effects, safety and efficacy; lack of knowledge and systemic and environmental obstacles. Physicians identified thematic barriers of limited physician knowledge; clinic and physician barriers and structural barriers. People with HNC and physicians recommended themes included: improved patient education, dissemination of trial information and interpersonal communication between community physicians and CCT staff. Conclusions: The themes identified by people with HNC and community physicians are consistent with research efforts and recommendations on how to increase the participation of people from minoritized populations in CCTs. This community needs assessment provides direction on the selection of strategies to increase CCT participation and referral. Patient or Public Contribution: This study focused on people with HNC and community physicians' lived experience and their interpretations of how they would consider a future Phase I clinical trial. In addition to our qualitative data reflecting community voices, a community member reviewed the draft interview guide before data collection and both people with HNC and physicians aided interpretation of the findings.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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