Health and social care experience and research perception of different ethnic minority populations in the East Midlands, United Kingdom (REPRESENT study).
Introduction: Ethnic minority populations experience significant health and social care disparities; despite experiencing a greater burden of diseases, these groups are underrepresented in health and social care research. Consequently, related research can be less applicable to these population grou...
| Publicado en: | Health Expectations Vol. 27; no. 1; pp. 1 - 14 |
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| Autores principales: | , , , , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Wiley-Blackwell
Feb2024
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=175641785&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 175641785 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 13696513 EVY jtl: Health Expectations issn: 13696513 maglogo: Y pubinfo: dt: Feb2024 vid: 27 iid: 1 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 175641785 175641785 175641785 10.1111/hex.13944 175641785 ppf: 1 ppct: 13 formats: fmt: – @attributes: type: T – @attributes: type: C – @attributes: type: P tig: atl: Health and social care experience and research perception of different ethnic minority populations in the East Midlands, United Kingdom (REPRESENT study). aug: au: Ekezie, Winifred Cassambai, Shabana Czyznikowska, Barbara Curtis, Ffion O'Mahoney, Lauren L. Willis, Andrew Chudasama, Yogini Khunti, Kamlesh Farooqi, Azhar affil: National Institute for Health and Social Care Research (NIHR), Applied Research Collaboration, East Midlands (ARC EM), Leicester, UK sug: subj: Ethnic Groups Psychosocial Factors Minority Groups Psychosocial Factors Research Priorities Social Determinants of Health Health Inequities Research, Medical Human Female Male Qualitative Studies Caribbean Persons Focus Groups Semi-Structured Interview England Thematic Analysis Descriptive Statistics Data Analysis Software Eastern Europeans Roma LGBTQ+ Persons Intersex Persons Asexual Persons Refugees Somali Persons South Asians Health Personnel, Minority Research Personnel Health Information Research Subjects Motivation Communication Empowerment Discrimination Funding Source Stigma Socioeconomic Factors Female Male ab: Introduction: Ethnic minority populations experience significant health and social care disparities; despite experiencing a greater burden of diseases, these groups are underrepresented in health and social care research. Consequently, related research can be less applicable to these population groups. The REPRESENT study aims to explore the health and social care experiences of ethnic minorities and other minoritised populations, their research interests and appropriate research practices. Methods: Focus groups and semistructured interviews were conducted between May and September 2022 with members of a number of ethnic minority communities in England. Data were audio recorded, transcribed and thematically coded using NVivo 12. Rigour was determined through extensive sampling, iterative data collection and analysis. Findings: Fifty‐two ethnic minority members were engaged in group interviews and one‐to‐one interviews. Participants included representatives of the following groups: African Caribbean, Eastern European, Gypsy Travellers, Lesbian, Gay, Bisexual, Transgender, Queer, Intersex and Asexual+, Refugee/Asylum Seekers, Somali and South Asian communities. Interviews were also conducted with ethnic minority healthcare providers and researchers. Three overarching categories were identified: health information, medical service experiences, health and social care concerns and health research. Health and social care services challenges were mostly attributed to discrimination, delayed services, poor cultural relevance and language and cultural barriers. The most influential information sources were local community organisations and word‐of‐mouth. The main health and social care concerns were chronic long‐term health conditions, mental health, maternal health and child development. Recommendations for research involved understanding the motivations for participation, improving communication and empowering communities. Top research priorities were long‐term health conditions, health promotion and education, early care interventions and understanding community needs. Interpretation: Discrimination and bias in health and social care provision have severe implications for worsening ethnic health inequalities. Healthcare commissioning authorities and policymakers can leverage the preference of ethnic minority groups for pharmacy services and community organisations to improve access to care. Improving research interest and engagement requires understanding individual community needs, community sensitivity, research relevance and cultural appropriateness. Patient or Public Contribution: Members of ethnic minority Patient and Public Involvement and Engagement group and Community Advisory Board supported the REPRESENT study design, conceptualisation and report development. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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