Hidden Ethical Challenges in Health Data Infrastructure.
Data infrastructure includes the bureaucratic, technical, and social mechanisms that assist in actions like data management, analysis, storage, and sharing. While issues like data sharing have been addressed in depth in bioethical literature, data infrastructure presents its own ethical consideratio...
| Publicado en: | Hastings Center Report Vol. 54; no. 1; pp. 15 - 20 |
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| Formato: | Artículo |
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Wiley-Blackwell
Jan2024
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ssf&AN=175644268&site=ehost-live header: @attributes: shortDbName: ssf uiTerm: 175644268 longDbName: Social Sciences Full Text (H.W. Wilson) uiTag: AN controlInfo: bkinfo: jinfo: jid: 00930334 HCR jtl: Hastings Center Report issn: 00930334 maglogo: Y pubinfo: dt: Jan2024 vid: 54 iid: 1 pid: 480 pub: Wiley-Blackwell artinfo: ui: 175644268 10.1002/hast.1564 ppf: 15 ppct: 5 formats: fmt: – @attributes: type: T – @attributes: type: P size: 291KB tig: atl: Hidden Ethical Challenges in Health Data Infrastructure. aug: au: Contaxis, Nicole su: Artificial intelligence Health Information resources Technology Blockchains Database management Content mining sug: subj: Artificial intelligence Health Information resources Technology Data Processing, Hosting, and Related Services Blockchains Database management Content mining keyword: data ethics data management data sharing information ethics research infrastructure data ethics data management data sharing information ethics research infrastructure ab: Data infrastructure includes the bureaucratic, technical, and social mechanisms that assist in actions like data management, analysis, storage, and sharing. While issues like data sharing have been addressed in depth in bioethical literature, data infrastructure presents its own ethical considerations, apart from the actions (such as data sharing and data analysis) that it enables. This essay outlines some of these considerations—namely, the ethics of efficiency, the visibility of infrastructure, the power of standards, and the impact of new technologies—in order to invite the bioethics community to participate in conversations about infrastructure, as their expertise is both needed and welcomed. pubtype: Academic Journal doctype: Article src: R language: English refInfo: copyright: @attributes: flag: N holdings: @attributes: islocal: N |
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