Implementing mainstream genetic counseling within the area‐wide network of the German Consortium Hereditary Breast and Ovarian Cancer (GC‐HBOC): Satisfaction of primary care providers with the provided state‐of‐the‐art training by the Cologne Center

The German Cancer Society (Deutsche Krebsgesellschaft DKG) has published a position paper to address the challenges of cancer patient care in the era of genomic medicine. The German Consortium Hereditary Breast and Ovarian Cancer (GC‐HBOC) has implemented this recommendation in its care concept for...

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Publicado en:Journal of Genetic Counseling Vol. 33; no. 1; pp. 206 - 216
Autores principales: Herold, Natalie, Bredow, Kathrin, Ernst, Corinna, Tüchler, Anja, Blümcke, Britta, Waha, Anke, Keser, Ebru, Hauke, Jan, Wappenschmidt, Barbara, Hahnen, Eric, Schmutzler, Rita Katharina, Rhiem, Kerstin
Formato: research tables/charts Journal Article
Publicado: Wiley-Blackwell Feb2024
Acceso en línea:Ver este registro en EBSCOhost
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      pub: Wiley-Blackwell
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        atl: Implementing mainstream genetic counseling within the area‐wide network of the German Consortium Hereditary Breast and Ovarian Cancer (GC‐HBOC): Satisfaction of primary care providers with the provided state‐of‐the‐art training by the Cologne Center
      aug:
        au:
          Herold, Natalie
          Bredow, Kathrin
          Ernst, Corinna
          Tüchler, Anja
          Blümcke, Britta
          Waha, Anke
          Keser, Ebru
          Hauke, Jan
          Wappenschmidt, Barbara
          Hahnen, Eric
          Schmutzler, Rita Katharina
          Rhiem, Kerstin
        affil: Center for Hereditary Breast and Ovarian Cancer, Center for Integrated Oncology (CIO), Medical Faculty, University Hospital Cologne, Cologne, Germany
      sug:
        subj:
          Genetic Counseling
          Breast Neoplasms Familial and Genetic
          Ovarian Neoplasms Familial and Genetic
          Primary Health Care
          Professional Knowledge
          Neoplasms Risk Factors
          Risk Assessment
          Course Evaluation
          Professional Practice, Evidence-Based
          Human
          Lecture
          Surveys
          T-Tests
          Data Analysis Software
          Descriptive Statistics
          Education, Continuing
          Feedback
          Physicians
          Funding Source
          Oncologic Care Organizations
          Germany
      ab: The German Cancer Society (Deutsche Krebsgesellschaft DKG) has published a position paper to address the challenges of cancer patient care in the era of genomic medicine. The German Consortium Hereditary Breast and Ovarian Cancer (GC‐HBOC) has implemented this recommendation in its care concept for families at risk. Core elements are the outcome‐oriented evaluation of structured and standardized clinical measures and reporting recommendations derived therefrom to primary care providers and patients. A cross‐sector network with certified breast cancer and gynecological cancer centers was founded in 2015, starting from the Cologne Center of the GC‐HBOC. To guarantee the knowledge transfer for mainstream genetic counseling, the Cologne center has established an educational program for physicians and specialized nurses in order to pilot trans‐sectoral knowledge transfer on risk assessment and risk‐stratified care. It consists of face‐to‐face lectures with written knowledge test, attending a genetic case conference and genetic counseling sessions with the opportunity to counsel under supervision. The lectures were accompanied by a structured evaluation of the participants' satisfaction and feedback of the needs in mainstream genetic counseling. Thereby, the network ensures that genetic counseling and testing is provided according to state‐of‐the‐art knowledge and allows physicians to participate in knowledge‐generating care outside the university setting and patients to receive care close to home. After multiple feedback cycles to improve the educational program, the GC‐HBOC, in cooperation with the German Cancer Society, has now adopted this concept and developed a common and uniform online curriculum funded by the Federal Ministry of Health. https://www.krebsgesellschaft.de/fortbildung‐familiaerer‐krebs.html.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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