"I Had to Know About It, I Had to Find It, I Had to Know How to Access it": Experiences of Access to Rehabilitation Services Among People Living with Long COVID.
Purpose: The aim of this qualitative study is to understand the need for, access to, and quality of rehabilitation services for people living with Long COVID. Little is known about the experiences of people living with Long COVID accessing rehabilitation services. Therefore, we explored health conce...
| Publicado en: | Physiotherapy Canada Vol. 76; no. 1; pp. 8 - 25 |
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| Autores principales: | , , , , , , , , , , , , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
University of Toronto Press
Feb2024
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=175878050&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 175878050 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 03000508 R42 jtl: Physiotherapy Canada issn: 03000508 maglogo: N pubinfo: dt: Feb2024 vid: 76 iid: 1 pid: 678 pub: University of Toronto Press place: North York, Ontario artinfo: ui: 175878050 174311237 175878050 175878050 10.3138/ptc-2023-0021 175878050 ppf: 8 ppct: 17 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: "I Had to Know About It, I Had to Find It, I Had to Know How to Access it": Experiences of Access to Rehabilitation Services Among People Living with Long COVID. aug: au: Hung, Pam Brehon, Katelyn Miciak, Maxi Brown, Darren A. Bostick, Geoffrey Brown, Cary Churchill, Katie Hall, Mark Hoddinott, Lance Hudon, Anne Hunter, Simone Perreault, Kadija Wieler, Marguerite Skolnik, Kate Lam, Grace Y. Weatherald, Jason Gross, Douglas P. affil: From the: Rehabilitation Research Centre, University of Alberta, Edmonton, Alberta, Canada sug: subj: Post-Acute COVID-19 Syndrome Rehabilitation COVID-19 Rehabilitation Health Services Accessibility Life Experiences Needs Assessment Quality of Health Care Human Male Female Middle Age Academic Medical Centers Canada Qualitative Studies Conceptual Framework Thematic Analysis Semi-Structured Interview Exploratory Research Purposive Sample Worker's Compensation Communications Media Patient Satisfaction Persons with Disabilities Physical Therapy Telephone Patient Centered Care Stigma Physical Therapists Psychosocial Factors Quality of Life Multidisciplinary Care Team Geographic Locations Health Care Delivery Peer Counseling Support, Psychosocial Physician-Patient Relations Videoconferencing Descriptive Statistics Comparative Studies Open-Ended Questionnaires Data Analysis Software Middle Aged: 45-64 years Male Female ab: Purpose: The aim of this qualitative study is to understand the need for, access to, and quality of rehabilitation services for people living with Long COVID. Little is known about the experiences of people living with Long COVID accessing rehabilitation services. Therefore, we explored health concerns leading people living with Long COVID to seek help to address functional concerns and their experiences with accessing and participating in rehabilitation. Method: Interpretive description guided exploration of participants' experiences with Long COVID rehabilitation in Alberta, Canada. Semi-structured interviews were completed with 56 participants recruited from: three publicly funded Long COVID clinics, a specialized private physiotherapy clinic, a telephone-based rehabilitation advice line, and a Workers' Compensation Board-funded Long COVID rehabilitation program. Recruitment through mass media coverage allowed us to include people who did not access rehabilitation services. Data analysis was informed by Braun and Clarke's reflexive thematic analysis. Results: Four themes were identified: (1) the burden of searching for guidance to address challenges with functioning and disability; (2) supportive relationships promote engagement in rehabilitation; (3) conditions for participation in safe rehabilitation; and (4) looking forward – provision of appropriate interventions at the right time. Conclusions: Our findings highlight the experiences of accessing rehabilitation services for people living with Long COVID. Results suggest approaches to Long COVID rehabilitation should be accessible, multi-disciplinary, flexible, and person-centred. Résumé: Objectif : étude qualitative pour comprendre les besoins en services de réadaptation des personnes qui vivent avec la COVID longue, l'accès à ces services et leur qualité. On sait peu de choses sur les expériences des personnes qui vivent avec la COVID longue et accèdent à des services de réadaptation. C'est pourquoi les auteurs ont exploré les inquiétudes qui incitent ces personnes à demander de l'aide pour répondre à leurs problèmes fonctionnels et les expériences qu'elles ont vécues en matière d'accès à la réadaptation et de participation aux services qui y sont associés. Méthodologie : exploration guidée de la description interprétative des expériences des participants qui suivent une réadaptation à cause de la COVID longue en Alberta, au Canada. Les chercheurs ont procédé à des entrevues semi-structurées auprès de 56 participants recrutés dans trois cliniques de COVID longue financées par le gouvernement, une clinique de physiothérapie spécialisée privée, une ligne téléphonique de conseils en réadaptation et un programme de réadaptation après la COVID longue remboursé par la commission des accidents de travail. Le recrutement dans les médias de masse a permis d'inclure des personnes qui n'avaient pas accédé aux services de réadaptation. L'examen des données reposait sur l'analyse thématique réflexive de Braun et Clarke. Résultats : les chercheurs ont relevé quatre thèmes : 1) le fardeau de la recherche de conseils pour répondre aux problèmes de fonctionnement et d'incapacité; 2) les relations de soutien qui favorisent la participation à la réadaptation; 3) les conditions nécessaires pour participer à une réadaptation sécuritaire et 4) pour l'avenir, la prestation d'interventions appropriées au bon moment. Conclusions : les constatations des auteurs font ressortir les expériences d'accès aux services de réadaptation chez les personnes qui vivent avec la COVID longue. Selon les résultats, les approches de réadaptation après la COVID longue devraient être accessibles, multidisciplinaires, flexibles et axées sur l'individu. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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