Transition of care: lessons from the Standardizing Care to Improve Outcomes in Pediatric End Stage Renal Disease (SCOPE) dialysis collaborative.
Background: Acknowledging the importance of preparing the pediatric dialysis patient for successful transfer to adult providers, centers from the Standardizing Care to Improve Outcomes in Pediatric End Stage Renal Disease (SCOPE) Dialysis Collaborative developed transition tools and performed iterat...
| Published in: | Pediatric Nephrology Vol. 39; no. 5; pp. 1551 - 1558 |
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| Main Authors: | , , , , , |
| Format: | research tables/charts Journal Article |
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Springer Nature
May2024
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| Online Access: | View this record in EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=176081532&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 176081532 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 0931041X EF1 jtl: Pediatric Nephrology issn: 0931041X maglogo: N pubinfo: dt: May2024 vid: 39 iid: 5 pid: 237 pub: Springer Nature place: New York, New York artinfo: ui: 176081532 174176252 176081532 176081532 10.1007/s00467-023-06244-x 176081532 ppf: 1551 ppct: 7 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Transition of care: lessons from the Standardizing Care to Improve Outcomes in Pediatric End Stage Renal Disease (SCOPE) dialysis collaborative. aug: au: Munshi, Raj Torres, Alison Hewitt Ramirez-Preciado, Bertha Reyes, Laura J. Castellanos Richardson, Troy Pruette, Cozumel S. affil: Seattle Children's Hospital, University of Washington, Seattle, WA, USA sug: subj: Kidney Failure, Chronic Therapy Quality Improvement Treatment Outcomes Pediatric Care Dialysis Collaboration Transitional Care Program Implementation Human Pilot Studies Infant Child, Preschool Child Support, Psychosocial Organizational Culture COVID-19 Pandemic Personnel Turnover Descriptive Statistics Dialysis Centers Infant: 1-23 months Child, Preschool: 2-5 years Child: 6-12 years ab: Background: Acknowledging the importance of preparing the pediatric dialysis patient for successful transfer to adult providers, centers from the Standardizing Care to Improve Outcomes in Pediatric End Stage Renal Disease (SCOPE) Dialysis Collaborative developed transition tools and performed iterative implementation of a transition of care (TOC) program to gain real-life insight into drivers and barriers towards implementation of a transition program for patients receiving dialysis. Methods: A TOC innovation workgroup was developed in 2019 from within SCOPE Collaborative that developed nine educational modules, along with introductory letter and assessment tool to be utilized by SCOPE centers. A 4-month pilot implementation study among six centers of varying patient population (age ≥ 11 years) was performed. TOC tools were further refined, and broader implementation within the collaborative was performed. Interim assessment of TOC tool utilization and implementation success was performed among 11 centers, as a foundation towards broader discussion regarding process, barriers, and success towards TOC implementation among 26 centers. Results: Transition champion was a key driver of successful implementation, and lack of institutional support and collaboration with adult dialysis centers were important barriers towards sustainability. COVID pandemic and increased staff turnover affected longer term implementation of TOC program. Conclusions: Successful transition and transfer of adolescents/young adults with kidney failure on dialysis remains a challenge. This study represents the experience of the largest cohort of pediatric dialysis centers, with diversity in population size and geography, towards development and implementation of a TOC program. This adds to the resources available to assist centers towards transition and transfer, with particular focus on transitioning patients on dialysis. A higher resolution version of the Graphical abstract is available as Supplementary information. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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