A Child with Crohn's Disease: Problems and Stress Level of Parents–Caregivers—A Cross-Sectional Study.
Crohn's disease (CD) is a chronic inflammatory bowel disease. The perception of the disease, its troublesome symptoms and the highly involved treatment mean that living with CD requires not only the affected child having to learn to cope with it, but also their parents. The aim of the study was to e...
| Publicado en: | Nursing Reports Vol. 14; no. 1; pp. 444 - 455 |
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| Autores principales: | , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
MDPI
Mar2024
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=176364823&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 176364823 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 2039439X EGNT jtl: Nursing Reports issn: 2039439X maglogo: N pubinfo: dt: Mar2024 vid: 14 iid: 1 pid: 97109 pub: MDPI artinfo: ui: 176364823 176364823 176364823 10.3390/nursrep14010034 176364823 ppf: 444 ppct: 11 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: A Child with Crohn's Disease: Problems and Stress Level of Parents–Caregivers—A Cross-Sectional Study. aug: au: Pasek, Małgorzata Stoietskyi, Monika Goździalska, Anna Jochymek, Małgorzata affil: Department of Nursing, Faculty of Health, University of Applied Sciences in Tarnów, 8th Mickiewicz St, 33-100 Tarnów, Poland sug: subj: Crohn Disease In Infancy and Childhood Inflammatory Bowel Diseases In Infancy and Childhood Parents Psychosocial Factors Caregivers Psychosocial Factors Parental Attitudes Caregiver Attitudes Stress, Psychological Parenting Human Male Female Child Cross Sectional Studies Questionnaires Sociodemographic Factors Child, Medically Fragile Health Knowledge Hospitalization Psychosocial Factors Diet Coefficient alpha Poland Descriptive Statistics Data Analysis Software Spearman's Rank Correlation Coefficient T-Tests One-Way Analysis of Variance Adult Middle Age Infant Child, Preschool Access to Information Child: 6-12 years Adult: 19-44 years Middle Aged: 45-64 years Infant: 1-23 months Child, Preschool: 2-5 years Male Female ab: Crohn's disease (CD) is a chronic inflammatory bowel disease. The perception of the disease, its troublesome symptoms and the highly involved treatment mean that living with CD requires not only the affected child having to learn to cope with it, but also their parents. The aim of the study was to examine the problems and levels of stress in parents–caregivers of children with CD. The study was cross-sectional and conducted using the diagnostic survey method. An original questionnaire was used to assess the socio-demographic situation and problems of caring for a child with CD, and the standardised PSS-10 questionnaire was added. The study group consisted of 60 parents who accompanied their children during hospitalization. The surveyed caregivers of children with CD found it difficult to maintain a specialised diet and deal with the need for hospitalization and the chronic use of medications. Access to the necessary knowledge about the disease posed the least difficulty in everyday life for a child with CD. The vast majority of parents (50, 83.34%) felt a high level of stress related to caring for a child with CD and, simultaneously, a lack of acceptance of the child's disease (39, 65%). The age of the respondents did not have a statistically significant effect on the occurrence of problems related to everyday functioning. The acceptance of the child's disease by the parents and informal caregivers of children with CD reduced their stress level. Parents could count on support from their relatives but, unfortunately, institutional support was not properly provided. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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