Facilitators and barriers of implementing end-of-life care volunteering in a hospital in five European countries: the iLIVE study.

Background: End-of-life (EoL) care volunteers in hospitals are a novel approach to support patients and their close ones. The iLIVE Volunteer Study supported hospital volunteer coordinators from five European countries to design and implement an EoL care volunteer service on general wards in their h...

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Published in:BMC Palliative Care Vol. 23; no. 1; pp. 1 - 15
Main Authors: Yildiz, Berivan, van der Heide, Agnes, Bakan, Misa, Iversen, Grethe Skorpen, Haugen, Dagny Faksvåg, McGlinchey, Tamsin, Smeding, Ruthmarijke, Ellershaw, John, Fischer, Claudia, Simon, Judit, Vibora-Martin, Eva, Ruiz-Torreras, Inmaculada, Goossensen, Anne, Allan, Simon, Barnestein-Fonseca, Pilar, Boughey, Mark, Christen, Andri, Lüthi, Nora, Egloff, Martina, Eychmüller, Steffen
Format: research tables/charts Journal Article
Published: BioMed Central 4/2/2024
Online Access:View this record in EBSCOhost
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      dt: 4/2/2024
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      pub: BioMed Central
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        10.1186/s12904-024-01423-5
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        atl: Facilitators and barriers of implementing end-of-life care volunteering in a hospital in five European countries: the iLIVE study.
      aug:
        au:
          Yildiz, Berivan
          van der Heide, Agnes
          Bakan, Misa
          Iversen, Grethe Skorpen
          Haugen, Dagny Faksvåg
          McGlinchey, Tamsin
          Smeding, Ruthmarijke
          Ellershaw, John
          Fischer, Claudia
          Simon, Judit
          Vibora-Martin, Eva
          Ruiz-Torreras, Inmaculada
          Goossensen, Anne
          Allan, Simon
          Barnestein-Fonseca, Pilar
          Boughey, Mark
          Christen, Andri
          Lüthi, Nora
          Egloff, Martina
          Eychmüller, Steffen
        affil: https://ror.org/018906e22 Department of Public Health, Erasmus MC, University Medical Center Rotterdam, Rotterdam, The Netherlands
      sug:
        subj:
          Palliative Care
          Volunteer Workers
          Program Implementation
          Hospitals European Union
          Health Services Accessibility
          Volunteer Experiences
          Netherlands
          Norway
          Slovenia
          Spain
          United Kingdom
          Focus Groups
          Interviews
          Conceptual Framework
          Implementation Science
          European Union
          Funding Source
          Models, Theoretical
          Descriptive Statistics
          Human
          Male
          Female
          Middle Age
          Adult
          Middle Aged: 45-64 years
          Adult: 19-44 years
          Male
          Female
      ab: Background: End-of-life (EoL) care volunteers in hospitals are a novel approach to support patients and their close ones. The iLIVE Volunteer Study supported hospital volunteer coordinators from five European countries to design and implement an EoL care volunteer service on general wards in their hospitals. This study aimed to identify and explore barriers and facilitators to the implementation of EoL care volunteer services in the five hospitals. Methods: Volunteer coordinators (VCs) from the Netherlands (NL), Norway (NO), Slovenia (SI), Spain (ES) and United Kingdom (UK) participated in a focus group interview and subsequent in-depth one-to-one interviews. A theory-inspired framework based on the five domains of the Consolidated Framework for Implementation Research (CFIR) was used for data collection and analysis. Results from the focus group were depicted in radar charts per hospital. Results: Barriers across all hospitals were the COVID-19 pandemic delaying the implementation process, and the lack of recognition of the added value of EoL care volunteers by hospital staff. Site-specific barriers were struggles with promoting the service in a highly structured setting with many stakeholders (NL), negative views among nurses on hospital volunteering (NL, NO), a lack of support from healthcare professionals and the management (SI, ES), and uncertainty about their role in implementation among VCs (ES). Site-specific facilitators were training of volunteers (NO, SI, NL), involving volunteers in promoting the service (NO), and education and awareness for healthcare professionals about the role and boundaries of volunteers (UK). Conclusion: Establishing a comprehensive EoL care volunteer service for patients in non-specialist palliative care wards involves multiple considerations including training, creating awareness and ensuring management support. Implementation requires involvement of stakeholders in a way that enables medical EoL care and volunteering to co-exist. Further research is needed to explore how trust and equal partnerships between volunteers and professional staff can be built and sustained. Trial registration: NCT04678310. Registered 21/12/2020.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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