Strategies to prevent or reduce inequalities in specific avoidable causes of death for adults with intellectual disability: A systematic review.

Background: We now have sufficient evidence demonstrating inequalities in specific avoidable causes of death for adults with intellectual disability compared to their peers without intellectual disability. Apart from covid‐19, the largest differentials that disadvantage people with intellectual disa...

Descripción completa

Detalles Bibliográficos
Publicado en:British Journal of Learning Disabilities Vol. 52; no. 2; pp. 312 - 350
Autores principales: Heslop, Pauline, Lauer, Emily
Formato: research systematic review tables/charts Journal Article
Publicado: Wiley-Blackwell Jun2024
Acceso en línea:Ver este registro en EBSCOhost
fields @attributes:
  recordID: 1
pdfLink:
plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=176989535&site=ehost-live
header:
  @attributes:
    shortDbName: ccm
    uiTerm: 176989535
    longDbName: CINAHL Complete
    uiTag: AN
  controlInfo:
    bkinfo:
    dissinfo:
    jinfo:
      jid:
        13544187
        F04
      jtl: British Journal of Learning Disabilities
      issn: 13544187
      maglogo: Y
    pubinfo:
      dt: Jun2024
      vid: 52
      iid: 2
      pid: 480
      pub: Wiley-Blackwell
      place: Malden, Massachusetts
    artinfo:
      ui:
        176989535
        175133082
        176989535
        176989535
        10.1111/bld.12576
        176989535
      ppf: 312
      ppct: 38
      formats:
        fmt:
          – @attributes:
              type: T
          – @attributes:
              type: C
          – @attributes:
              type: P
      tig:
        atl: Strategies to prevent or reduce inequalities in specific avoidable causes of death for adults with intellectual disability: A systematic review.
      aug:
        au:
          Heslop, Pauline
          Lauer, Emily
        affil: School for Policy Studies, University of Bristol, Bristol, England
      sug:
        subj:
          Health Inequities Psychosocial Factors
          Healthcare Disparities
          Intellectual Disability In Adulthood
          Cause of Death Psychosocial Factors
          Cause of Death Prevention and Control
          Human
          Systematic Review
          Persons with Intellectual Disabilities Psychosocial Factors
          Adult
          Pneumonia Mortality
          Pneumonia, Aspiration Mortality
          Epilepsy Mortality
          Cerebrovascular Disorders Mortality
          Myocardial Ischemia Mortality
          Venous Thrombosis Mortality
          Diabetes Mellitus Mortality
          Sepsis Mortality
          PubMed
          Embase
          CINAHL Database
          Psycinfo
          Cochrane Library
          Health Behavior
          Life Style Changes
          Exercise
          Nutrition
          Social Determinants of Health
          Adult: 19-44 years
      ab: Background: We now have sufficient evidence demonstrating inequalities in specific avoidable causes of death for adults with intellectual disability compared to their peers without intellectual disability. Apart from covid‐19, the largest differentials that disadvantage people with intellectual disability are in relation to pneumonia, aspiration pneumonia, epilepsy, cerebrovascular disease, ischaemic heart disease, deep vein thrombosis, diabetes and sepsis. The aim of this systematic review is to report on strategies at the individual, population or policy levels aimed at preventing these conditions that are applicable to adults with intellectual disability and that have been based on or recommended by research. Methods: Systematic review of PUBMED, EMBASE, CINAHL, PsychInfo, Social Care Online, International Bibliography of the Social Sciences (IBSS), Web of Science, Scopus, Overton, the Cochrane Library and Google Scholar databases was carried out. Searches were completed on 30 June 2023. Quantitative, qualitative and mixed‐methods research; systematic, scoping or evidence‐based reviews; and audit and reports of mortality reviews were included. Publications included in the review were about preventing the eight potentially avoidable causes of death. Findings: Ninety‐four papers were included in the review (9 in relation to pneumonia; 11 for aspiration pneumonia; 18 for sudden unexpected death in epilepsy; 7 for cerebrovascular disease; 8 for ischaemic heart disease; 4 for deep vein thrombosis; 31 for diabetes; 6 for sepsis). The eight most frequently occurring potentially avoidable causes of death in people with intellectual disability are very different medical conditions, but they shared striking similarities in how they could be prevented. The literature overwhelmingly implicated the need to make lifestyle changes to address obesity, lack of exercise and poor nutrition, and to have regular medical reviews. In addition, 'whole‐population' approaches are required that look beyond the individual to the social determinants of health. Conclusions: We found little peer‐reviewed evidence specifically about preventing these conditions in people with intellectual disability. However, most of the literature about preventative strategies pertaining to the general population was applicable to people with intellectual disability, albeit that some 'reasonable adjustments' would be required. Accessible Summaries: People with intellectual disability die from some illnesses that could be avoided. This is a bigger problem in people with intellectual disability than in people without intellectual disability.We searched for evidence about what we could do to prevent these illnesses.We found that although the most common illnesses are very different, there are things we can do that will prevent them. Some things will prevent a few illnesses.The best things that we can do are to eat a healthy diet with lots of fruit and vegetables, to do lots of exercise and to lose weight if we are overweight. Changing our lifestyle like this can make a big difference to how long we live.The government also needs to do things, like making sure that healthy food is easy to get and that there are safe places to exercise.
      pubtype: Academic Journal
      doctype:
        research
        systematic review
        tables/charts
        Journal Article
      ougenre: Article
    language: English
    refInfo:
    holdings:
      @attributes:
        islocal: N