A Systematic Review of Recruiting and Retaining Sociodemographically Diverse Families in Neurodevelopmental Research Studies.

Underrepresentation of socioeconomically, culturally, and/or linguistically diverse (SCLD) children with neurodevelopmental disorders (NDD) and their families has become a focal point for researchers. This systematic review aimed to identify researchers' strategies for recruiting and retaining SCLD...

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Publicado en:Journal of Autism & Developmental Disorders Vol. 54; no. 6; pp. 2307 - 2322
Autores principales: Mire, Sarah S., Truong, Dieu M., Sakyi, Georgina J., Ayala-Brittain, Mycah L., Boykin, Jelisa D., Stewart, Christian M., Daniels, Fre'Dasia, Duran, Brenda, Gardner, Scarlett, Barth, Alexandra M., Richardson, Georgette, McKee, Shannon L.
Formato: research systematic review tables/charts Journal Article
Publicado: Springer Nature Jun2024
Acceso en línea:Ver este registro en EBSCOhost
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      pub: Springer Nature
      place: New York, New York
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        atl: A Systematic Review of Recruiting and Retaining Sociodemographically Diverse Families in Neurodevelopmental Research Studies.
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          Mire, Sarah S.
          Truong, Dieu M.
          Sakyi, Georgina J.
          Ayala-Brittain, Mycah L.
          Boykin, Jelisa D.
          Stewart, Christian M.
          Daniels, Fre'Dasia
          Duran, Brenda
          Gardner, Scarlett
          Barth, Alexandra M.
          Richardson, Georgette
          McKee, Shannon L.
        affil: https://ror.org/048sx0r50 Department of Psychological, Health, & Learning Sciences, University of Houston, Houston, TX, USA
      sug:
        subj:
          Research Subject Recruitment
          Research Subject Retention
          Sociodemographic Factors
          Mental Disorders Diagnosed in Childhood
          Research, Medical
          Human
          Chi Square Test
          Healthcare Disparities
          Data Analysis Software
          Systematic Review
          Medline
          Psycinfo
          CINAHL Database
          PubMed
      ab: Underrepresentation of socioeconomically, culturally, and/or linguistically diverse (SCLD) children with neurodevelopmental disorders (NDD) and their families has become a focal point for researchers. This systematic review aimed to identify researchers' strategies for recruiting and retaining SCLD families of children with NDD, published between 1993 and 2018. One hundred twenty-six articles were included, and study samples were categorized as "High SCLD" and "Low SCLD". Chi-square tests of independence were used to determine associations between sample composition (i.e., High/Low SCLD sample) and study characteristics reported. Significant associations were found between sample composition and studies that explicitly stated intention to recruit SCLD families, χ2(1) = 12.70, p <.001, Phi = 0.38 (moderate); and for studies that reported the following participant characteristics: language, χ2(1) = 29.58, p <.001, Phi = 0.48 (moderate-to-large); and race/ethnicity + SES + language, χ2(1) = 19.26, p <. 001, Phi = 0.39 (moderate). However, associations were not found between recruitment and retention approaches and whether studies included High SCLD or Low SCLD samples. Further study of NDD researchers' recruitment and retention approaches that successfully include SCLD families is needed.
      pubtype: Academic Journal
      doctype:
        research
        systematic review
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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