Patient‐led innovation and global health justice: Open‐source digital health technology for type 1 diabetes care.
Health innovation is mainly envisioned in direct connection to medical research institutions or pharmaceutical and technology companies. Yet, these types of innovation often do not meet the needs and expectations of individuals affected by health conditions. With the emergence of digital health tech...
| Publicado en: | Bioethics Vol. 38; no. 6; pp. 511 - 529 |
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| Autores principales: | , , |
| Formato: | Artículo |
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Wiley-Blackwell
Jul2024
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ssf&AN=177717328&site=ehost-live header: @attributes: shortDbName: ssf uiTerm: 177717328 longDbName: Social Sciences Full Text (H.W. Wilson) uiTag: AN controlInfo: bkinfo: jinfo: jid: 02699702 6PJ jtl: Bioethics issn: 02699702 maglogo: Y pubinfo: dt: Jul2024 vid: 38 iid: 6 pid: 480 pub: Wiley-Blackwell artinfo: ui: 177717328 10.1111/bioe.13205 ppf: 511 ppct: 18 formats: tig: atl: Patient‐led innovation and global health justice: Open‐source digital health technology for type 1 diabetes care. aug: au: Jansky, Bianca Hendl, Tereza Nocanda, Azakhiwe Z. affil: Institute for Ethics and History of Health in Society, University of Augsburg, Augsburg, Germany Institute of Ethics, History and Theory of Medicine, Ludwig‐Maximilians‐University, Munich, Germany Faculty of Social Sciences, Humboldt University, Berlin, Germany su: Health services accessibility Social justice Diffusion of innovations Patient care Communities Bioethics Race Social integration Health equity Psychosocial factors Patients' attitudes Digital technology Type 1 diabetes People with diabetes Digital health Insulin pumps World health Medical needs assessment Automation sug: subj: Health services accessibility Social justice Diffusion of innovations Patient care Communities Bioethics Race Social integration Health equity Psychosocial factors Patients' attitudes Research and Development in the Physical, Engineering, and Life Sciences (except Biotechnology) Digital technology Type 1 diabetes People with diabetes Digital health Insulin pumps World health Medical needs assessment Automation keyword: digital health empirical bioethics health justice mHealth open‐source patient‐led innovation digital health empirical bioethics health justice mHealth open‐source patient‐led innovation ab: Health innovation is mainly envisioned in direct connection to medical research institutions or pharmaceutical and technology companies. Yet, these types of innovation often do not meet the needs and expectations of individuals affected by health conditions. With the emergence of digital health technologies and social media, we can observe a shift, which involves people living with illness modifying and improving medical and health devices outside of the formal research and development sector, figuring both as users and innovators. This patient‐led innovation has been celebrated in innovation studies and economics as a "bottom‐up" type of innovation. In this article, we take a closer look at open‐source patient‐led innovation in the context of type 1 diabetes care. In our inquiry, we pay particular attention to the social and ethical dimensions of this innovation, building on empirical material. Upon exploring the notion of patient‐led innovation and its socio‐political context through the lens of intersectional and global health justice, we argue that a proactive strategy is needed to ensure that open‐source patient‐led innovation will be more globally accessible, center the health needs of the most underserved populations, as well as facilitate equitable and just health benefits. To support this aim, we provide a range of examples of different initiatives addressing the persistent inequalities that have so far inhibited patient‐led innovation from more fully materializing its innovative potential. pubtype: Academic Journal doctype: Article src: R language: English refInfo: copyright: @attributes: flag: N holdings: @attributes: islocal: N |
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