Nurturing Attentiveness: A Naturalistic Observation Study of Personal Care Interactions Between People With Advanced Dementia and Their Caregivers.
Background and Objectives Personal care interactions can provide vital opportunities for caregivers to engage with a person living with advanced dementia. However, interactions may also be a contentious experience, what makes this so is not fully understood. We aimed to examine features of personal...
| Publicado en: | Gerontologist Vol. 64; no. 6; pp. 1 - 14 |
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| Autores principales: | , , , , , |
| Formato: | Artículo |
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Oxford University Press / USA
Jun2024
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ssf&AN=177745726&site=ehost-live header: @attributes: shortDbName: ssf uiTerm: 177745726 longDbName: Social Sciences Full Text (H.W. Wilson) uiTag: AN controlInfo: bkinfo: jinfo: jid: 00169013 GET jtl: Gerontologist issn: 00169013 maglogo: N pubinfo: dt: Jun2024 vid: 64 iid: 6 pid: 622 pub: Oxford University Press / USA artinfo: ui: 177745726 10.1093/geront/gnae004 ppf: 1 ppct: 13 formats: tig: atl: Nurturing Attentiveness: A Naturalistic Observation Study of Personal Care Interactions Between People With Advanced Dementia and Their Caregivers. aug: au: Backhouse, Tamara Jeon, Yun-Hee Killett, Anne Green, Jessica Khondoker, Mizanur Mioshi, Eneida affil: School of Health Sciences, University of East Anglia , Norwich, Norfolk , UK Sydney Nursing School, The University of Sydney , Sydney, New South Wales , Australia Norwich Medical School, University of East Anglia , Norwich, Norfolk , UK su: United Kingdom Cross-sectional method Content analysis Uncertainty Caregivers Communication Social support Patient participation Patients' attitudes Research funding Scientific observation Quality assurance Patient refusal of treatment Personal grooming Dementia patients Video recording sug: subj: Cross-sectional method Content analysis Uncertainty Caregivers Communication Social support Patient participation Patients' attitudes United Kingdom Other Individual and Family Services Research funding Scientific observation Quality assurance Patient refusal of treatment Personal grooming Dementia patients Video recording keyword: Activities of daily living Family carers Long-term care Personhood Social care Activities of daily living Family carers Long-term care Personhood Social care ab: Background and Objectives Personal care interactions can provide vital opportunities for caregivers to engage with a person living with advanced dementia. However, interactions may also be a contentious experience, what makes this so is not fully understood. We aimed to examine features of personal care interactions between caregivers and people with advanced dementia to understand how care may be improved. Research Design and Methods This was a naturalistic observation study using one-off video-recorded observations of personal care interactions between 14 people with advanced dementia and 12 caregivers (n = 7 care-home staff, n = 5 family carers) in the United Kingdom (total observation time 03:01:52). Observations were analyzed with observational video coding to determine the frequency of actions of people with dementia and qualitative content analysis for in-depth examination. Results Refusals of care were present in 32% of video sections. Active engagement of people with dementia was observed in 66% of sections. Rare contentious interactional components were characterized by the person with dementia appearing to show uneasiness and caregivers being flustered and uncertain. However, caregivers typically emanated a nurturing attentiveness, were attuned to the person, and skilled in seamlessly supporting them through care activities. Discussion and Implications Findings draw on real-world empirical evidence to reinvigorate the notion of person-centeredness in dementia care. The findings provide much needed insight into practical ways to improve care interactions for people with advanced dementia and enhance their personhood. Appropriate training/guidance for caregivers could support positive personal care experiences for both the person with dementia and caregiver. pubtype: Academic Journal doctype: Article src: R language: English refInfo: copyright: @attributes: flag: N holdings: @attributes: islocal: N |
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