"It was classed as a nonemergency": Women's experiences of kidney disease and preconception decision‐making, family planning, and parenting in the United Kingdom during COVID‐19.
Objectives: To investigate the experiences of women with kidney disease, residing in the United Kingdom (UK), living through the first 18 months of the COVID‐19 pandemic with specific focus on preconception decision‐making, family planning, and parenting. Methods: We conducted a mixed‐methods study,...
| Publicado en: | Perspectives on Sexual & Reproductive Health Vol. 56; no. 2; pp. 147 - 158 |
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| Autores principales: | , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Wiley-Blackwell
Jun2024
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=178021171&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 178021171 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 15386341 K87 jtl: Perspectives on Sexual & Reproductive Health issn: 15386341 maglogo: Y pubinfo: dt: Jun2024 vid: 56 iid: 2 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 178021171 176017081 178021171 178021171 10.1111/psrh.12256 178021171 ppf: 147 ppct: 11 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: "It was classed as a nonemergency": Women's experiences of kidney disease and preconception decision‐making, family planning, and parenting in the United Kingdom during COVID‐19. aug: au: Laughlin, Leah Mc Noyes, Jane Neukirchinger, Barbara Williams, Denitza Phillips, Rhiannon Griffin, Sian affil: School of Medical and Health Sciences, Bangor University, Bangor, UK sug: subj: Women Psychosocial Factors Kidney Diseases Decision Making Family Planning Parenting COVID-19 Pandemic United Kingdom Patient Attitudes Reproductive Health Human Adolescence Adult Middle Age Female United Kingdom Multimethod Studies Questionnaires Interviews Communication Physician-Patient Relations Descriptive Statistics Appointments and Schedules Social Networks Anxiety Grief Mothers Trust Confusion Worry Depression, Postpartum Catastrophization Funding Source Adolescent: 13-18 years Adult: 19-44 years Middle Aged: 45-64 years Female ab: Objectives: To investigate the experiences of women with kidney disease, residing in the United Kingdom (UK), living through the first 18 months of the COVID‐19 pandemic with specific focus on preconception decision‐making, family planning, and parenting. Methods: We conducted a mixed‐methods study, comprising an online survey and follow‐up interviews, with UK‐resident women aged 18–50. Results: We received 431 surveys and conducted 30 interviews. Half (n = 221, 51%) of the survey respondents considered that COVID‐19 influenced the quality of communication with healthcare professionals and 68% (n = 295) felt that the pandemic disrupted their support networks. Interview participants indicated that delayed and canceled appointments caused anxiety, grief, and loss of pregnancy options. Women's perception of themselves as (good) mothers as well as their capacity to have and raise a child, meet partners, and sustain healthy relationships was negatively affected by the "clinically extremely vulnerable" label. Women's trust in their healthcare was dismantled by miscommunication and variation in lockdown rules that caused confusion and increased worry. Women reported that COVID‐19 contributed to postnatal depression, excessive concern over infant mortality, preoccupation over others following rules, and catastrophising. Conclusion: Some women in the UK with chronic kidney disease lost or missed their opportunity to have children during the pandemic. Future pandemic planners need to look more holistically and longer term at what is and is not classed as an emergency, both in how services are reconfigured and how people with chronic conditions are identified, communicated with, and treated. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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