Rationalizing the Influence of Co‐Design on Distress, Clinical Decision‐Making and Disease Self‐Management of Cancer Patients‐as‐Partners: A Quasi‐Experimental Study.
Introduction: Cancer is regarded as a major worldwide burden. Patient distress has been linked to disease progression. Studies show that engagement strategies affect clinical decision‐making and patient outcomes. The optimal engagement method is a partnership that integrates the patient's expertise...
| Publicado en: | Health Expectations Vol. 27; no. 3; pp. 1 - 13 |
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| Autores principales: | , , , |
| Formato: | clinical trial research tables/charts Journal Article |
| Publicado: |
Wiley-Blackwell
Jun2024
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=178131491&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 178131491 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 13696513 EVY jtl: Health Expectations issn: 13696513 maglogo: Y pubinfo: dt: Jun2024 vid: 27 iid: 3 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 178131491 178131491 178131491 10.1111/hex.14113 178131491 ppf: 1 ppct: 12 formats: fmt: – @attributes: type: T – @attributes: type: C – @attributes: type: P tig: atl: Rationalizing the Influence of Co‐Design on Distress, Clinical Decision‐Making and Disease Self‐Management of Cancer Patients‐as‐Partners: A Quasi‐Experimental Study. aug: au: Alrayshouni, Zahraa Dayekh, Alaa El‐Tassi, Ahmad Pakai, Annamária affil: Patients Affairs Department, Saint George Hospital, Beirut, Lebanon sug: subj: Psychological Distress Prevention and Control Decision Making, Clinical Self-Management Neoplasms Prevention and Control Cancer Patients Collaboration Disease Management Patient-Reported Outcomes Human Quasi-Experimental Studies Quantitative Studies Lebanese Persons Hospitalization Teamwork Prospective Studies Cross Sectional Studies Multimethod Studies Academic Medical Centers Experimental Studies Summated Rating Scaling Descriptive Statistics Data Analysis Software Paired T-Tests Analysis of Variance Chi Square Test Extended Family Male Female Adolescence Adult Middle Age Aged Questionnaires Pretest-Posttest Design Lebanon Clinical Assessment Tools Quality Improvement Patient Attitudes Clinical Trials Adolescent: 13-18 years Adult: 19-44 years Middle Aged: 45-64 years Aged: 65+ years Male Female ab: Introduction: Cancer is regarded as a major worldwide burden. Patient distress has been linked to disease progression. Studies show that engagement strategies affect clinical decision‐making and patient outcomes. The optimal engagement method is a partnership that integrates the patient's expertise into the comprehensive co‐design of the healthcare system. Objectives: This is the first study to investigate cancer patient‐as‐partner experience and its impact on distress levels, decision‐making and self‐management. Methods: It is a quantitative and quasi‐experimental study that adopted a partnership committee at a Lebanese hospital. A stratified random sampling approach was used, and data were collected by self‐administered questionnaires. We utilized the standardized distress thermometer and PPEET. Results: We recruited 100 patient partners. Cancer patients‐as‐partners had optimal engagement experience in QI projects (mean = 4; SD = 0.4). The main partnership benefit was improved hospitalization experience (49%). Almost half of PP reported no challenges faced (49%). Recommendations for improvement were training (19%), team dynamics management (12%) and proper time allocation (7%). The distress level post‐partnership was significantly reduced (t = 12.57, p < 0.0001). This study highlights the importance of partnership and its ability to influence shared decision‐making preference [χ2(2) = 13.81, p = 0.025] and self‐management practices [F(3, 11.87) = 7.294, p = 0.005]. Conclusion: Research findings suggest that partners from disadvantaged groups can have optimal partnership experience. A partnership model of care can shape the healthcare system into a people‐oriented culture. Further research is needed to explore diverse PP engagement methodologies and their effect on organizational development. Patient or Public Contribution: Patients and family members were engaged in the co‐design of the study methodology, especially the modification of a research instrument. Patient partners with lived experience were involved in the patient partnership committee as core members to improve healthcare system design and evaluation. pubtype: Academic Journal doctype: clinical trial research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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