Living with functional movement disorders: a tale of three battles. An interpretative phenomenological analysis.
Functional movement disorders (FMD) have poor prognosis and high physical and psychological co-morbidity. Their pathogenesis remains unclear, clinicians often find them difficult to treat, and lack of agreement between healthcare providers and patients is common. This study aimed to explore the expe...
| Publicado en: | Psychology & Health Vol. 39; no. 8; pp. 1130 - 1148 |
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| Autores principales: | , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Taylor & Francis Ltd
Aug2024
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=178176601&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 178176601 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 08870446 7WK jtl: Psychology & Health issn: 08870446 maglogo: N pubinfo: dt: Aug2024 vid: 39 iid: 8 pid: 377 pub: Taylor & Francis Ltd place: Philadelphia, Pennsylvania artinfo: ui: 178176601 159598036 178176601 178176601 10.1080/08870446.2022.2130312 178176601 ppf: 1130 ppct: 18 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Living with functional movement disorders: a tale of three battles. An interpretative phenomenological analysis. aug: au: Bazydlo, Sylwia Eccles, Fiona J. R. affil: Division of Health Research, Health Innovation One, Sir John Fisher Drive, Lancaster University, Lancaster, UK sug: subj: Movement Disorders Persons with Disabilities Psychosocial Factors Health Services Needs and Demand Life Experiences Health Services Accessibility Human Phenomenological Research Qualitative Studies Dystonic Disorders Somatoform Disorders Nervous System Diseases United Kingdom Semi-Structured Interview Audiorecording Thematic Analysis Stigma Hope Control (Psychology) Empowerment National Health Programs Male Female Adult Middle Age Aged Adult: 19-44 years Middle Aged: 45-64 years Aged: 65+ years Male Female ab: Functional movement disorders (FMD) have poor prognosis and high physical and psychological co-morbidity. Their pathogenesis remains unclear, clinicians often find them difficult to treat, and lack of agreement between healthcare providers and patients is common. This study aimed to explore the experiences of living with FMD to improve understanding of its impact and patients' needs. Ten participants across the UK were recruited online through a charity's social media platforms. Semi structured interviews were conducted via video calls and were audio recorded and verbatim transcripts were analysed using interpretative phenomenological analysis. Three superordinate themes were generated from the data, representing the three battles fought by the participants: (1) intrapersonal: the tug of war with the secret agent within- the power struggle with symptoms; (2) interpersonal: navigating stigma and self-preservation; (3) systemic: pursuing hope and treatments against helplessness and passivity. Loss of control, feelings of powerlessness and oppression by symptoms is often mirrored in participants' experiences of seeking healthcare and navigating societal stigma. Active efforts to regain influence, improve quality of life and maintain hope can be jeopardised by others' dismissive attitudes and lack of knowledge. Antonovsky's model of salutogenesis is proposed as a useful framework for facilitating empowerment in FMD service provision. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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