A remote parent-led early intervention protocol to promote motor development in infants with congenital heart disease: a feasibility pilot study of a randomized clinical trial.

This study evaluated the feasibility of a parent-led, home-based early intervention for motor development in infants with Congenital Heart Disease (CHD), part of a larger multicenter, single-blind randomized controlled trial (ClinicalTrials.gov NCT05907109). Parents, supported by remote specialists...

Descripción completa

Detalles Bibliográficos
Publicado en:Developmental Neurorehabilitation Vol. 27; no. 3/4; pp. 134 - 145
Autores principales: Michelon, Rita Cassiana, Lucchese-Lobato, Fernanda
Formato: pictorial research tables/charts Journal Article
Publicado: Taylor & Francis Ltd Apr/May2024
Acceso en línea:Ver este registro en EBSCOhost
fields @attributes:
  recordID: 1
pdfLink:
plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=178298007&site=ehost-live
header:
  @attributes:
    shortDbName: ccm
    uiTerm: 178298007
    longDbName: CINAHL Complete
    uiTag: AN
  controlInfo:
    bkinfo:
    dissinfo:
    jinfo:
      jid:
        17518423
        2Y75
      jtl: Developmental Neurorehabilitation
      issn: 17518423
      maglogo: Y
    pubinfo:
      dt: Apr/May2024
      vid: 27
      iid: 3/4
      pid: 377
      pub: Taylor & Francis Ltd
      place: Philadelphia, Pennsylvania
    artinfo:
      ui:
        178298007
        178082493
        178298007
        178298007
        10.1080/17518423.2024.2365796
        178298007
      ppf: 134
      ppct: 11
      formats:
        fmt:
          – @attributes:
              type: T
          – @attributes:
              type: P
      tig:
        atl: A remote parent-led early intervention protocol to promote motor development in infants with congenital heart disease: a feasibility pilot study of a randomized clinical trial.
      aug:
        au:
          Michelon, Rita Cassiana
          Lucchese-Lobato, Fernanda
        affil: Programa de Pós-Graduação em Ciências da Saúde, Institute of Cardiology – University Foundation of Cardiology (IC-FUC), Porto Alegre, Brazil
      sug:
        subj:
          Heart Defects, Congenital
          Parents of Children with Disabilities
          Early Childhood Intervention
          Protocols
          Motor Skills In Infancy and Childhood
          Home Environment
          Infant Development
          Home Health Care
          Telehealth
          Treatment Outcomes
          Human
          Prospective Studies
          Pilot Studies
          Multicenter Studies
          Single-Blind Studies
          Infant
          Male
          Female
          Mothers
          Adult
          Brazil
          Funding Source
          Questionnaires
          Descriptive Statistics
          Personal Satisfaction
          Self-Efficacy
          Infant: 1-23 months
          Adult: 19-44 years
          Male
          Female
      ab: This study evaluated the feasibility of a parent-led, home-based early intervention for motor development in infants with Congenital Heart Disease (CHD), part of a larger multicenter, single-blind randomized controlled trial (ClinicalTrials.gov NCT05907109). Parents, supported by remote specialists weekly, engaged in multidomain stimulation activities five days a week, for six months. Feasibility was assessed via parental questionnaires, adherence rates, and infant motor development assessments. Despite high dropout and mortality rates, results showed 80% adherence, 91% parental satisfaction, 75% availability, and 60% self-efficacy. No significant motor skill differences were noted between the intervention (IG; n = 19) and control groups (CG; n = 11) at six months, but the higher baseline risk in IG suggests promotion of motor skills in the intervention group. Future studies in Brazil might extend the study duration to address high dropout and mortality rates.
      pubtype: Academic Journal
      doctype:
        pictorial
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
    refInfo:
    holdings:
      @attributes:
        islocal: N