Evaluation of a co‐designed Health Check‐in for adults with intellectual and developmental disabilities and family caregivers to support pandemic recovery.
Background: The COVID‐19 pandemic has brought about disruptions in healthcare for adults with intellectual and developmental disabilities. There is a need to explore ways to promote proactive healthcare and better prepare individuals for healthcare encounters. Methods: A co‐designed tool, the COVID...
| Publicado en: | British Journal of Learning Disabilities Vol. 52; no. 3; pp. 512 - 524 |
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| Autores principales: | , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Wiley-Blackwell
Sep2024
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=178558300&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 178558300 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 13544187 F04 jtl: British Journal of Learning Disabilities issn: 13544187 maglogo: Y pubinfo: dt: Sep2024 vid: 52 iid: 3 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 178558300 178558300 178558300 10.1111/bld.12593 178558300 ppf: 512 ppct: 12 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Evaluation of a co‐designed Health Check‐in for adults with intellectual and developmental disabilities and family caregivers to support pandemic recovery. aug: au: Lunsky, Yona Volpe, Tiziana St. John, Laura Thakur, Anupam Lake, Johanna affil: Azrieli Adult Neurodevelopmental Centre, Centre for Addiction and Mental Health, Toronto Ontario,, Canada sug: subj: COVID-19 Pandemic Psychosocial Factors Intellectual Disability Rehabilitation Developmental Disabilities Rehabilitation Family Education Caregivers Education Support, Psychosocial Evaluation Health Promotion Methods Recovery Evaluation Health Care Delivery Evaluation Health Services Accessibility Evaluation Human Male Female Adult Middle Age Structured Interview Focus Groups Family Attitudes Caregiver Attitudes Telehealth Program Implementation Thematic Analysis Quantitative Studies Descriptive Research Content Analysis Statistical Significance Data Analysis Software Descriptive Statistics Funding Source Adult: 19-44 years Middle Aged: 45-64 years Male Female ab: Background: The COVID‐19 pandemic has brought about disruptions in healthcare for adults with intellectual and developmental disabilities. There is a need to explore ways to promote proactive healthcare and better prepare individuals for healthcare encounters. Methods: A co‐designed tool, the COVID Check‐in Tool, was introduced as part of a virtual health education programme to encourage proactive healthcare. Implementation of this Health Check‐in was evaluated with 36 adults with intellectual and developmental disabilities and 96 family caregivers who completed the programme using surveys, structured interviews and focus groups. Findings: Forty‐four percent of participants engaged in the Health Check‐in process, resulting in many reported benefits for those who participated. However, there were also barriers to initiating the Check‐in, along with challenges using the COVID Check‐in Tool, according to both the adults with disabilities who were interviewed and the family caregivers. Conclusions: The study underscores the importance of considering ways to integrate tools into routine healthcare practices, to facilitate improved healthcare delivery for people with intellectual and developmental disabilities during pandemic recovery efforts. As well, involving people with lived experience in the development and implementation of healthcare resources is critical. Accessible Summary: Our team worked together to make a tool that would help people with intellectual and developmental disabilities talk to their doctor about health problems after not seeing them a lot because of the pandemic. We called this tool the 'COVID Check‐in'.Then people from our team taught online health courses about how to use the COVID Check‐in Tool and other health topics.After the courses were over, we asked 36 adults with intellectual and developmental disabilities and 96 family caregivers if they had a Health Check‐in with their doctor and how it went, or what problems they had with it.Almost half of the people who took the courses had a Health Check‐in and most of the people thought it was helpful. Some people did not do it or did it but had problems with it.We end the paper with some ideas of how to make it easier to check in with the doctor and why it is important to include people with disabilities and family caregivers when making healthcare tools. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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