Pioneering Ethics in a Longitudinal Study : The Early Development of the ALSPAC Ethics and Law Committee
Available Open Access under CC-BY-NC licence. The Avon Longitudinal Study of Parents and Children (ALSPAC), also known as Children of the 90s, is a world-leading birth cohort study that uniquely enrolled participants in utero and obtained genetic material from a geographic population. It instigated...
| Autor principal: | |
|---|---|
| Formato: | Libro |
| Publicado: |
Policy Press
2018
|
| Materias: | |
| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=nlebk&AN=1791300&site=ehost-live header: @attributes: shortDbName: nlebk uiTerm: 1791300 longDbName: eBook Collection (EBSCOhost) uiTag: AN controlInfo: bkinfo: btl: Pioneering Ethics in a Longitudinal Study : The Early Development of the ALSPAC Ethics and Law Committee aug: au: Karen Birmingham isbn: 9781447340423 imageinfo: pubinfo: dt: @attributes: year: 2018 month: 01 day: 01 dtAvail: @attributes: year: 2024 month: 05 day: 03 pub: Policy Press pubContract: Policy Press place: Bristol price: 0.01 limitsGroup: maxCheckoutDays: 1500 pda: N printPagesOffline: 100 printPagesOnline: 100 previewPages: 10000 prePubGroup: dewey: @attributes: class: 174 item: 174 lc: @attributes: class: Q180.55.M67 item: Q 180 .55 .M67 artinfo: ui: 1791300 1030816779 formats: fmt: @attributes: type: EB doid: NL$1791300$PDF caption: PDF download: Y tig: atl: Pioneering Ethics in a Longitudinal Study : The Early Development of the ALSPAC Ethics and Law Committee ptl: Pioneering Ethics in a Longitudinal Study aug: au: Karen Birmingham su: Longitudinal method--Moral and ethical aspects Families--Research--Moral and ethical aspects Research--Moral and ethical aspects sug: subj: SOCIAL SCIENCE / Research MEDICAL / Epidemiology MEDICAL / Ethics Longitudinal method--Moral and ethical aspects Families--Research--Moral and ethical aspects Research--Moral and ethical aspects ab: Available Open Access under CC-BY-NC licence. The Avon Longitudinal Study of Parents and Children (ALSPAC), also known as Children of the 90s, is a world-leading birth cohort study that uniquely enrolled participants in utero and obtained genetic material from a geographic population. It instigated the innovative but controversial ALSPAC Ethics and Law Committee. This book describes in detail the early work of this Committee, from establishing the core ethical principles necessary to protect participants, to the evolution of policies concerning confidentiality and anonymity, consent, non-intervention and disclosure of individual results, data access and security. Quotes from interviews with early members of the Committee reflect not only on its pioneering work but also on the unusual style and inspirational leadership of the first Chair, Professor Michael Furmston. This will be of interest to those involved in other cohort studies in understanding the evolution of ethical policies as ALSPAC developed. pubtype: eBook doctype: Book ougenre: Book language: English copyright: @attributes: flag: N copyrightText: holdings: @attributes: islocal: N |
|---|