Diversity of Participants in Williams Syndrome Intervention Studies.
Purpose: This study describes participant diversity in Williams syndrome (WS) intervention studies. Methods: A literature search was conducted to identify prospective treatment studies including participants with WS. Data was extracted on the reporting of and information provided on age, sex, cognit...
| Publicado en: | Journal of Autism & Developmental Disorders Vol. 54; no. 10; pp. 3888 - 3899 |
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| Autores principales: | , , , , , |
| Formato: | research systematic review tables/charts Journal Article |
| Publicado: |
Springer Nature
Oct2024
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=180153683&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 180153683 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 01623257 AUT jtl: Journal of Autism & Developmental Disorders issn: 01623257 maglogo: N pubinfo: dt: Oct2024 vid: 54 iid: 10 pid: 237 pub: Springer Nature place: New York, New York artinfo: ui: 180153683 169963868 180153683 180153683 10.1007/s10803-023-06088-2 180153683 ppf: 3888 ppct: 11 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Diversity of Participants in Williams Syndrome Intervention Studies. aug: au: Shin, Eva Ravichandran, Caitlin Renzi, Danielle Pober, Barbara R. McDougle, Christopher J. Thom, Robyn P. affil: Lurie Center for Autism, 1 Maguire Road, 02421, Lexington, MA, USA sug: subj: Williams Syndrome Experimental Studies Research Subjects Demography Cultural Diversity Human Funding Source Systematic Review Descriptive Statistics Data Analysis Software Social Class Race Factors PubMed ab: Purpose: This study describes participant diversity in Williams syndrome (WS) intervention studies. Methods: A literature search was conducted to identify prospective treatment studies including participants with WS. Data was extracted on the reporting of and information provided on age, sex, cognitive ability, socioeconomic status, race, and ethnicity. Results: Eleven eligible articles were identified. Reporting rates of demographic factors varied considerably, with the highest rates for age and sex (100%) and the lowest reporting rates for race (18%) and ethnicity (9%). Combining demographic data from the two studies that reported on race and/or ethnicity (n = 33), 88% of participants were White. The combined participant mean age was 20.9 years. Conclusion: There is a low frequency of reporting on several demographic factors including socioeconomic status, race, and ethnicity in WS intervention studies. There is a need for increased representation of racial and ethnic minority groups, older participants, and more cognitively impaired patients in WS research. pubtype: Academic Journal doctype: research systematic review tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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