Preferences for Neurodevelopmental Follow-Up Care for Children: A Discrete Choice Experiment.
Introduction: Identifying and addressing neurodevelopmental delays in children can be challenging for families and the healthcare system. Delays in accessing services and early interventions are common. The design and delivery of these services, and associated outcomes for children, may be improved...
| Publicado en: | Patient Vol. 17; no. 6; pp. 645 - 663 |
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| Autores principales: | , , , , |
| Formato: | equations & formulas research tables/charts Journal Article |
| Publicado: |
Springer Nature
Nov2024
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=180153841&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 180153841 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 11781653 91S4 jtl: Patient issn: 11781653 maglogo: N pubinfo: dt: Nov2024 vid: 17 iid: 6 pid: 237 pub: Springer Nature place: New York, New York artinfo: ui: 180153841 179311809 180153841 180153841 10.1007/s40271-024-00717-3 180153841 ppf: 645 ppct: 18 formats: tig: atl: Preferences for Neurodevelopmental Follow-Up Care for Children: A Discrete Choice Experiment. aug: au: Sharma, Pakhi Kularatna, Sanjeewa Abell, Bridget McPhail, Steven M. Senanayake, Sameera affil: https://ror.org/03pnv4752 Australian Centre for Health Services Innovation and Centre for Healthcare Transformation, School of Public Health and Social Work, Queensland University of Technology, 60 Musk Avenue, Kelvin Grove, 4059, Brisbane, QLD, Australia sug: subj: Mental Disorders Diagnosed in Childhood Therapy After Care In Infancy and Childhood Patient Preference Evaluation Family Attitudes Evaluation Needs Assessment Human Caregiver Attitudes Probability Pilot Studies Structural Equation Modeling Descriptive Statistics Funding Source Child Comparative Studies Attention Deficit Hyperactivity Disorder Confidence Intervals Male Female Adult Child: 6-12 years Adult: 19-44 years Male Female ab: Introduction: Identifying and addressing neurodevelopmental delays in children can be challenging for families and the healthcare system. Delays in accessing services and early interventions are common. The design and delivery of these services, and associated outcomes for children, may be improved if service provision aligns with families' needs and preferences for receiving care. The aim of this study is to identify families' preferences for neurodevelopmental follow-up care for children using an established methodology. Methods: We used a discrete choice experiment (DCE) to elicit families' preferences. We collected data from families and caregivers of children with neurodevelopmental needs. The DCE process included four stages. In stage 1, we identified attributes and levels to be included in the DCE using literature review, interviews, and expert advice. The finalised attributes were location, mode of follow-up, out-of-pocket cost per visit, mental health counselling for parents, receiving educational information, managing appointments, and waiting time. In stage 2, we generated choice tasks that contained two alternatives and a 'neither' option for respondents to choose from, using a Bayesian d-efficient design. These choice tasks were compiled in a survey that also included demographic questions. We conducted pre- and pilot tests to ensure the functionality of the survey and obtain priors. In stage 3, the DCE survey was administered online. We received 301 responses. In stage 4, the analysis was conducted using a latent class model. Additionally, we estimated the relative importance of attributes and performed a scenario analysis. Results: Two latent classes were observed. More families with full-time employees, higher incomes, postgraduate degrees, and those living in metropolitan areas were in class 1 compared with class 2. Class 1 families preferred accessing local public health clinics, face-to-face follow-up, paying AUD100 to AUD500, mental health support, group educational activities, health service-initiated appointments, and waiting < 3 months. Class 2 families disliked city hospitals when compared with private, preferred paying AUD100 or no cost, and had similar preferences regarding mental health support and wait times as class 1. However, no significant differences were noted in follow-up modality, receiving educational information, and appointment management. The relative importance estimation suggested that location was most important for class 1 (28%), whereas for class 2, cost accounted for nearly half of the importance when selecting an alternative. The expected uptake of follow-up care, estimated under three different hypothetical scenarios, may increase by approximately 24% for class 2 if an 'ideal' scenario taking into account preferences was implemented. Conclusion: This study offers insights into aspects that may be prioritised by health services and policymakers to improve the design and delivery of neurodevelopmental follow-up care for children. The findings may enhance the organisation and functioning of existing care programmes; and therefore, improve the long-term outcomes of children with neurodevelopmental needs and their families. pubtype: Academic Journal doctype: equations & formulas research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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