Rare epilepsy syndromes: understanding treatment goals and management challenges.
Why you should read this article: • To develop your knowledge of rare epilepsy syndromes • To enhance your understanding of the association between epilepsy and learning disability • To contribute towards revalidation as part of your 35 hours of CPD (UK readers) • To contribute towards your professi...
| Published in: | Learning Disability Practice Vol. 27; no. 5; pp. 32 - 42 |
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| Format: | CEU exam questions review Journal Article |
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Royal College of Nursing of the United Kingdom (The)
Oct2024
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| Online Access: | View this record in EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=180167310&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 180167310 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 14658712 FTU jtl: Learning Disability Practice issn: 14658712 maglogo: N pubinfo: dt: Oct2024 vid: 27 iid: 5 pid: 6040 pub: Royal College of Nursing of the United Kingdom (The) artinfo: ui: 180167310 180167310 180167310 10.7748/ldp.2023.e2230 180167310 ppf: 32 ppct: 10 formats: tig: atl: Rare epilepsy syndromes: understanding treatment goals and management challenges. aug: au: Kerr, Niamh affil: Registered nurse tutor, Muiríosa Foundation, Moore Abbey, Monasterevin, Kildare, Ireland sug: subj: Epilepsy Epidemiology Epilepsy Therapy Epilepsy Complications Disease Management Goals and Objectives Anticonvulsants Intellectual Disability Patient Centered Care Patient Education Rare Diseases Seizures Prevention and Control Seizures Drug Therapy Diet, Ketogenic Health Information Nursing Role Education, Continuing (Credit) Quality of Life Multidisciplinary Care Team Caregivers Education Comorbidity Vagal Stimulation Cannabinoids Therapeutic Use Lennox-Gastaut Syndrome Surgery ab: Why you should read this article: • To develop your knowledge of rare epilepsy syndromes • To enhance your understanding of the association between epilepsy and learning disability • To contribute towards revalidation as part of your 35 hours of CPD (UK readers) • To contribute towards your professional development and local registration renewal requirements (non-UK readers). Epilepsy is more prevalent in people with learning disabilities than in the general population and there are a number of rare epilepsy syndromes closely associated with learning disability. These syndromes are challenging to manage, notably because seizures are often refractory, the risk of status epilepticus is high and comorbidities are usually present. People with a rare epilepsy syndrome need high levels of specialist support throughout their lives. Such syndromes are rare, but professionals who care for people with learning disabilities are likely to encounter them at some point in their career. Improved knowledge and understanding of rare epilepsy syndromes can assist learning disability nurses to provide adequate information, care and support to service users, family members and paid carers as well as to other healthcare professionals. This article explains the association between epilepsy and learning disability, describes rare epilepsy syndromes and explores the goals of treatment, additional treatment options and challenges of management. pubtype: Academic Journal doctype: CEU exam questions review Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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