Asking the "Right" Questions about Financial Hardship: Using Cognitive Interviews with Adolescents and Young Adults with Cancer and Their Caregivers to Inform Measure Development.
Purpose: Financial hardship as a result of cancer treatment can have a significant and lasting negative impact on adolescents and young adults (AYAs) and their families. To address a lack of developmentally informed and psychometrically sound measures of financial hardship for AYAs and their caregiv...
| Publicado en: | Journal of Adolescent & Young Adult Oncology Vol. 13; no. 5; pp. 760 - 768 |
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| Autores principales: | , , , , , , , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Mary Ann Liebert, Inc.
Oct2024
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=180216306&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 180216306 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 21565333 EGZ7 jtl: Journal of Adolescent & Young Adult Oncology issn: 21565333 maglogo: N pubinfo: dt: Oct2024 vid: 13 iid: 5 pid: 1365 pub: Mary Ann Liebert, Inc. place: New Rochelle, New York artinfo: ui: 180216306 180216306 180216306 10.1089/jayao.2024.0041 180216306 ppf: 760 ppct: 8 formats: tig: atl: Asking the "Right" Questions about Financial Hardship: Using Cognitive Interviews with Adolescents and Young Adults with Cancer and Their Caregivers to Inform Measure Development. aug: au: Salsman, John M. Nightingale, Chandylen L. Canzona, Mollie R. Howard, Dianna S. Tucker-Seeley, Reginald D. Wiseman, Kimberly D. Victorson, David E. Robles, Joanna M. Roth, Michael Smith, Regina Reeve, Bryce B. Danhauer, Suzanne C. affil: Department of Social Sciences and Health Policy, Wake Forest University School of Medicine, Winston Salem, North Carolina, USA. sug: subj: Cancer Patients Psychosocial Factors Cancer Patients Psychosocial Factors Caregivers Psychosocial Factors Neoplasms Economics Health Care Costs Financial Stress Evaluation Instrument Construction Instrument Validation Psychometrics Evaluation National Institutes of Health (U.S.) Patient-Reported Outcomes Human Funding Source United States Validation Studies Interviews Financial Stress Risk Factors Risk Assessment Social Determinants of Health Adolescence Adult Instrument Adaptation Purposive Sample Descriptive Statistics Content Validity Qualitative Studies Questionnaires Adolescent: 13-18 years Adult: 19-44 years ab: Purpose: Financial hardship as a result of cancer treatment can have a significant and lasting negative impact on adolescents and young adults (AYAs) and their families. To address a lack of developmentally informed and psychometrically sound measures of financial hardship for AYAs and their caregivers, we used rigorous measurement development methods recommended by the National Institutes of Health's Patient-Reported Outcomes Measurement Information System® (PROMIS®) to determine comprehensibility and relevance of measure content. Methods: Our multi-step approach involved item identification, refinement, and generation; translatability and reading level review; and cognitive interviews. A purposive sample of 25 AYAs and 10 caregivers participated, ensuring representation across age, education, gender, race/ethnicity, and cancer type. Results: Fifty patient-reported and caregiver-reported items were developed across material, psychosocial, and behavioral subdomains of financial hardship. Translatability and reading level reviews resulted in 22 patient-reported and 25 caregiver-reported items being rewritten. Eighty-eight percent of patients and all caregivers described the items as easy to answer. Younger AYAs (15 to 25 years of age) were more likely to say the items were less relevant for them. Forty-six patient-reported and 48 caregiver-reported items were recommended for further testing. Conclusion: This study is the first to use in-depth qualitative methods to center AYA patient and caregiver experiences in the creation of new measures of financial hardship. Data support the comprehensibility and content validity of these preliminary item banks. Future large-scale, quantitative testing will lead to additional refinements and support the use of short forms and computer-adaptive testing for a diverse sample of AYAs and their caregivers. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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