Working it out together: Lessons and insights into inclusive research in an arts context.
Background: I'm Me is a creative research project co‐created between York St John University and Mind the Gap, investigating learning disabled and autistic artists' understandings of identity, representation and voice. Methods: In this paper, we use Walmsley and Johnson's criteria for inclusive rese...
| Publicado en: | British Journal of Learning Disabilities Vol. 52; no. 4; pp. 676 - 687 |
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| Autores principales: | , , |
| Formato: | Journal Article |
| Publicado: |
Wiley-Blackwell
Dec2024
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=180656363&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 180656363 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 13544187 F04 jtl: British Journal of Learning Disabilities issn: 13544187 maglogo: Y pubinfo: dt: Dec2024 vid: 52 iid: 4 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 180656363 177771480 10.1111/bld.12609 180656363 ppf: 676 ppct: 11 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Working it out together: Lessons and insights into inclusive research in an arts context. aug: au: Reason, Matthew Acton, Kelsie Foulds, Daniel affil: Institute for Social Justice, York St. John University, York, UK sug: subj: Autism Spectrum Disorder Learning Disorders Artists Intellectual Disability Research, Medical Joint Practice Persons with Intellectual Disabilities Ethics Interpersonal Relations Decision Making ab: Background: I'm Me is a creative research project co‐created between York St John University and Mind the Gap, investigating learning disabled and autistic artists' understandings of identity, representation and voice. Methods: In this paper, we use Walmsley and Johnson's criteria for inclusive research to reflect on the involvement of people with learning disabilities and autism in I'm Me. Findings: Researchers need to carefully reflect on who benefits from research. Long‐term relationships allow genuine allyship and for research design to emerge in an inclusive manner. Taking the time to develop access and clear structures for decision‐making can support people with learning disabilities' participation and control over research. Part of access is sharing our findings in accessible ways, in this case, by using plain language and artistic outputs. Conclusions: Working out how people with learning disabilities and autism should be involved in research has involved establishing structures, reflecting and responding to create as much involvement and enable as much decision‐making as possible. Accessible Summary: I'm Me is an inclusive research project. As an inclusive research project, people with learning disabilities need to be involved and care about the research. Non‐learning disabled researchers need to respect people with learning disabilities.We tried to make I'm Me inclusive and we learned that:Non‐learning disabled people need to build long‐term working relationships with people with learning disabilities and their support organisations.Non‐learning disabled people need to think about if the research is serving learning disabled people.Understanding access needs takes time and energy. Everyone needs to work on access.Everyone should be clear about how decisions are made. It should be clear when people with learning disabilities are being asked for their opinions and when they are making decisions.Sharing what we've learned in different ways makes it easier for more people to understand.Having clear ways of working can help people with learning disabilities have control over part of the research. pubtype: Academic Journal doctype: Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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