Negotiating pace, focus and identities: Patient/public involvement/engagement in a palliative care study.
Patient and public involvement and engagement (PPIE) is an increasingly important component of research conduct to enhance processes and potential for impact, yet is rarely critically interrogated. This paper draws on Foucauldian analysis to highlight the disciplinary powers and tensions arising in...
| Publicado en: | Sociology of Health & Illness Vol. 46; no. 7; pp. 1327 - 1345 |
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| Autores principales: | , , , , , , , , , , |
| Formato: | Artículo |
| Publicado: |
Wiley-Blackwell
Sep2024
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| Materias: | |
| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ssf&AN=180951323&site=ehost-live header: @attributes: shortDbName: ssf uiTerm: 180951323 longDbName: Social Sciences Full Text (H.W. Wilson) uiTag: AN controlInfo: bkinfo: jinfo: jid: 01419889 7RA jtl: Sociology of Health & Illness issn: 01419889 maglogo: Y pubinfo: dt: Sep2024 vid: 46 iid: 7 pid: 480 pub: Wiley-Blackwell artinfo: ui: 180951323 10.1111/1467-9566.13785 ppf: 1327 ppct: 18 formats: tig: atl: Negotiating pace, focus and identities: Patient/public involvement/engagement in a palliative care study. aug: au: Forbat, Liz Macgregor, Aisha Brown, Talitha McCormack, Brendan Spilsbury, Karen Rutherford, Alasdair Hanratty, Barbara Hockley, Jo McKenzie, Maisie Soulsby, Irene Ogden, Margaret affil: Faculty of Social Sciences, University of Stirling, Stirling, UK Department of Sociology, University of Surrey, London, UK Susan Wakil School of Nursing and Midwifery, University of Sydney, Sydney New South Wales,, Australia School of Healthcare, University of Leeds, Leeds, UK Faculty of Medical Science, University of Newcastle, Newcastle upon Tyne, UK College of Medicine and Veterinary Science, University of Edinburgh, Edinburgh, UK PPI Lay Member, Faculty of Social Sciences, University of Stirling, Stirling, UK su: Power (Social sciences) Self-evaluation Palliative treatment Qualitative research Negotiation Interviewing Patient participation Research funding Thematic analysis sug: subj: Power (Social sciences) Self-evaluation Palliative treatment Qualitative research Negotiation Interviewing Patient participation Research funding Thematic analysis keyword: co‐production negotiation palliative care patient/public involvement and engagement power co‐production negotiation palliative care patient/public involvement and engagement power ab: Patient and public involvement and engagement (PPIE) is an increasingly important component of research conduct to enhance processes and potential for impact, yet is rarely critically interrogated. This paper draws on Foucauldian analysis to highlight the disciplinary powers and tensions arising in PPIE. The paper draws on a nested evaluation interview study with three PPIE members and eight academics, who had been involved in an implementation science study focused on palliative care. PPIE members were involved in the whole study and are co‐authors of this article. Through shared values and commitments to the study, a team culture of equality was developed. Yet while power was dispersed and taken‐up by all team members, in so doing a self‐governance approach within the team was developed. The pace and focus of discussions was at times more subjugating than co‐production. Identities and positions were porous; the simplistic division of 'academic' and 'PPIE' did not stand up to scrutiny, with an increasing blurring of boundaries as people's experiences and insights changed over time. Continual, subtle, negotiations of roles, inputs and identities were manifest throughout the project. PPIE in research involves subtle, complex and ongoing disciplinary practices enacted by all members of the team. pubtype: Academic Journal doctype: Article src: R language: English refInfo: copyright: @attributes: flag: N holdings: @attributes: islocal: N |
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