School Experiences in the Disease Management of Children With Celiac Disease: A Qualitative Study.

Background: This study was conducted to examine in depth the disease management experiences of school‐age children with celiac disease and the effects of family, friends, and teachers on disease management at school. Methods: The study employed a qualitative research method using the phenomenology d...

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Publicado en:Child: Care, Health & Development Vol. 50; no. 6; pp. 1 - 12
Autores principales: Sahın, Özlem Ozturk, Tasdelen, Yeliz, Kutahyalıoglu, Nesibe S., Guney, Emine Uzuntarla, Ozer, Kadriye
Formato: research tables/charts Journal Article
Publicado: Wiley-Blackwell Nov2024
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Nov2024
      vid: 50
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      pub: Wiley-Blackwell
      place: Malden, Massachusetts
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        atl: School Experiences in the Disease Management of Children With Celiac Disease: A Qualitative Study.
      aug:
        au:
          Sahın, Özlem Ozturk
          Tasdelen, Yeliz
          Kutahyalıoglu, Nesibe S.
          Guney, Emine Uzuntarla
          Ozer, Kadriye
        affil: Faculty of Health Sciences, Pediatric Nursing Department, Karabük University, Karabük, Turkiye
      sug:
        subj:
          Celiac Disease Therapy
          Disease Management In Infancy and Childhood
          School Health Services
          Life Experiences In Infancy and Childhood
          Support, Psychosocial
          Family
          Friendship
          Teachers
          Human
          Qualitative Studies
          Phenomenological Research
          Semi-Structured Interview
          Patient Attitudes
          Diet, Gluten-Free
          Adaptation, Physiological
          Learning Environment
          Celiac Disease Diagnosis
          Rural Areas
          Health Services Accessibility
          Emotions
          Cognition
          Child Behavior
          School Nurses
          Nursing Role
          Child, Preschool
          Child
          Child, Preschool: 2-5 years
          Child: 6-12 years
      ab: Background: This study was conducted to examine in depth the disease management experiences of school‐age children with celiac disease and the effects of family, friends, and teachers on disease management at school. Methods: The study employed a qualitative research method using the phenomenology design. Face‐to‐face, semi‐structured, in‐depth interviews were conducted with children (n = 14) with celiac disease. The transcripts were analysed using a phenomenological approach and an inductive process. Results: Three main themes were identified: Individual, Institutional, and Environmental. It was observed that children adapted better to the celiac diet as they got older, but they had difficulty adjusting to the diet in the school environment. In addition, it was found that school‐age children had challenges in diagnosing the disease and finding products suitable for the diet in a rural city with limited facilities. It was determined that the approaches of peers and teachers throughout the child's school life affected the disease management levels of children. Conclusion: The study reveals the emotional, cognitive, and behavioural difficulties that children face while adapting to celiac disease and diet, especially in the school environment. The results emphasize that school‐age children with celiac disease should not be ignored and that the school nurse plays an essential role in this process.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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