Qualitative study of the lived experience of methylphenidate prescribed for children with a fetal alcohol spectrum disorder.
Fetal Alcohol Spectrum Disorders (FASD) refer to physical, cognitive, and behavioural symptoms in an individual whose mother consumed alcohol during pregnancy. It is the leading cause of non-genetic avoidable mental disability, with an estimated worldwide prevalence of 1%. Attention Deficit Hyperact...
| Publicado en: | European Child & Adolescent Psychiatry Vol. 33; no. 12; pp. 4219 - 4236 |
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| Autores principales: | , , , , , |
| Formato: | pictorial research tables/charts Journal Article |
| Publicado: |
Springer Nature
Dec2024
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=181465083&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 181465083 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 10188827 EJ3 jtl: European Child & Adolescent Psychiatry issn: 10188827 maglogo: N pubinfo: dt: Dec2024 vid: 33 iid: 12 pid: 237 pub: Springer Nature place: New York, New York artinfo: ui: 181465083 177261864 181465083 181465083 10.1007/s00787-024-02457-z 181465083 ppf: 4219 ppct: 17 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Qualitative study of the lived experience of methylphenidate prescribed for children with a fetal alcohol spectrum disorder. aug: au: Morin, Clémentine Doray, Bérénice Dumar, Cécilia Balit, Jude Bouscaren, Nicolas Spodenkiewicz, Michel affil: Pôle de Santé Mentale, CIC-EC 1410, CHU de La Réunion, BP350, Saint-Pierre, La Réunion, France sug: subj: Life Experiences Evaluation Methylphenidate Therapeutic Use Fetal Alcohol Syndrome Drug Therapy Attention Deficit Hyperactivity Disorder Drug Therapy Caregivers Human Male Female Child Adolescence Prescribing Patterns Semi-Structured Interview Purposive Sample Phenomenological Research Drug Toxicity Drugs, Prescription Caregiver Attitudes Drug Administration Funding Source Child: 6-12 years Adolescent: 13-18 years Male Female ab: Fetal Alcohol Spectrum Disorders (FASD) refer to physical, cognitive, and behavioural symptoms in an individual whose mother consumed alcohol during pregnancy. It is the leading cause of non-genetic avoidable mental disability, with an estimated worldwide prevalence of 1%. Attention Deficit Hyperactivity Disorder (ADHD) diagnostic criteria are met for 50–80% of patients with FASD. Methylphenidate (MPH) is the first-line pharmacological treatment for ADHD. This study aims to explore the lived experience of children with FASD taking MPH and their caregivers to adapt prescribing modalities by considering different ways to administer the drugs. We hope to improve the therapeutic alliance between the children and their caregivers by gaining an insiders' view of the medication perception. Semi-structured interviews with children and their caregivers were conducted in this qualitative study. Data collection by purposive sampling continued until we reached theoretical sufficiency. Data were analysed using interpretative phenomenological analysis. We conducted 16 semi-structured interviews: 8 with the children aged 7–12, 5 boys and 3 girls and 8 with their caregivers. The analysis showed that inadequate palatability and capsule form experiences were the leading causes of children's non-adherence to the treatment. MPH appeared to be a valuable aid for caregivers even if they had concerns about its potential toxicity. However, it is necessary to identify caregivers' expectations concerning MPH to adapt the prescription in terms of choice of specialty and intake modalities. Regular support was required to reduce caregivers' fears of dependence, personality transformation and long-term adverse effects. Information on palatability should be given when prescribing MPH to children with ADHD as well as its possible side effects or toxicity. It highlights the need for further studies of the experience of palatability of drugs prescribed to children. When prescribing a treatment, children should be more involved in medical counselling and it is necessary to understand the child's perspectives to co-construct common representations for better therapeutical adherence. pubtype: Academic Journal doctype: pictorial research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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