Implementing Resourcefulness Training © with Parent Caregivers of Children Dependent on Medical Technology During the COVID-19 Pandemic: Lessons Learned from a Randomized Controlled Trial.

Parent caregivers of children requiring life-saving medical technology (e.g., mechanical ventilation) report higher levels of stress and poorer health than other caregivers, often neglecting health-promoting behaviors for themselves. This article describes an iterative implementation science strateg...

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Publicado en:Clinical Nursing Research Vol. 34; no. 1; pp. 58 - 67
Autores principales: Toly, Valerie Boebel, Russell, Katie N., Shi, Sophie, Zauszniewski, Jaclene A.
Formato: research tables/charts randomized controlled trial Journal Article
Publicado: Sage Publications Inc. Jan2025
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Jan2025
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      pub: Sage Publications Inc.
      place: Thousand Oaks, California
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        atl: Implementing Resourcefulness Training © with Parent Caregivers of Children Dependent on Medical Technology During the COVID-19 Pandemic: Lessons Learned from a Randomized Controlled Trial.
      aug:
        au:
          Toly, Valerie Boebel
          Russell, Katie N.
          Shi, Sophie
          Zauszniewski, Jaclene A.
        affil: Case Western Reserve University, Cleveland, OH, USA
      sug:
        subj:
          Caregivers Education
          Parents Education
          Child, Medically Fragile
          COVID-19 Pandemic
          Respiration, Artificial Education
          Implementation Science
          Telehealth
          Cognitive Therapy
          Human
          Female
          Male
          Randomized Controlled Trials
          Random Assignment
          Pilot Studies
          Control Group
          Quality of Life
          Depression Symptoms
          Stress, Psychological
          Caregiver Burden
          Technology, Medical
          Self-Management
          Vignettes
          Comparative Studies
          Descriptive Statistics
          Funding Source
          Female
          Male
      ab: Parent caregivers of children requiring life-saving medical technology (e.g., mechanical ventilation) report higher levels of stress and poorer health than other caregivers, often neglecting health-promoting behaviors for themselves. This article describes an iterative implementation science strategy used to improve intervention delivery for a randomized controlled trial testing a telehealth, cognitive-behavioral resourcefulness intervention with this population during the COVID-19 pandemic. This process consisted of reflective team meetings and content analysis. Initial adjustments were made after content analysis of pilot study materials before intervention delivery including an intervention script, checklist, online daily log, Health Insurance Portability and Accountability Act (HIPAA)-compliant texting option, training material access, and fidelity checks. In vivo adjustments were implemented in four areas: recruitment/engagement, participation and use of resources, in-person delivery, and virtual delivery. Our efforts to streamline intervention delivery were enhanced by incorporating an iterative implementation science strategy including analysis and adjustment of intervention delivery procedures to decrease participant burden and promote intervention adherence. Reflective team meetings and a collaborative, problem-solving approach to resolve the various barriers and challenges with the randomized controlled trial were integral components of intervention delivery. This study informs future intervention research by providing details of barriers faced, pragmatic adjustments made to intervention implementation, and lessons learned (NCT0410524; www.clinicaltrials.gov).
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        randomized controlled trial
        Journal Article
      ougenre: Article
    language: English
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