'Motivating Implicit Chinese to Express Themselves Is the Biggest Barrier': A Qualitative Study of Chinese Researchers' Perceptions of Barriers and Facilitators to Patient Engagement in Research.
Background: Patient Engagement in Research (PER) has demonstrated benefits for patients, researchers and research outcomes. However, China lacks substantial experience in implementing PER. The implementation of PER in China faces unique challenges due to social‐cultural differences. This study explo...
| Publicado en: | Health Expectations Vol. 27; no. 6; pp. 1 - 12 |
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| Autores principales: | , , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Wiley-Blackwell
Dec2024
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=181889872&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 181889872 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 13696513 EVY jtl: Health Expectations issn: 13696513 maglogo: Y pubinfo: dt: Dec2024 vid: 27 iid: 6 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 181889872 181889872 181889872 10.1111/hex.70112 181889872 ppf: 1 ppct: 11 formats: fmt: – @attributes: type: T – @attributes: type: C – @attributes: type: P tig: atl: 'Motivating Implicit Chinese to Express Themselves Is the Biggest Barrier': A Qualitative Study of Chinese Researchers' Perceptions of Barriers and Facilitators to Patient Engagement in Research. aug: au: Yang, Lin Liu, Yu‐xiao Wang, Bi‐xia Yu, Meng‐jiao Bian, Wei‐Wei Wang, Cai‐feng Ruan, Hong affil: Department of Nursing, Shanghai Ninth People's Hospital, Shanghai JiaoTong University School of Medicine, Shanghai, China sug: subj: Patient Participation Health Services Research Research Personnel Psychosocial Factors Chinese Persons Health Services Accessibility Attitude of Health Personnel Evaluation Health Promotion Quality Improvement Human China Qualitative Studies Purposive Sample Semi-Structured Interview Thematic Analysis Patient Selection Research Subjects Data Analysis Software Descriptive Statistics Funding Source ab: Background: Patient Engagement in Research (PER) has demonstrated benefits for patients, researchers and research outcomes. However, China lacks substantial experience in implementing PER. The implementation of PER in China faces unique challenges due to social‐cultural differences. This study explores the perspectives of Chinese researchers to identify barriers and facilitators, aiming to guide future PER initiatives and enhance the role of patients in research. Method: Purposive sampling was employed to recruit clinical researchers with diverse healthcare backgrounds in China. Semi‐structured interviews, conducted by a qualified researcher, followed interview guidelines derived from a literature review and pilot study modifications. Thematic analysis was applied using QSR Nvivo 8.0. Results: A total of 13 participants were included. Five main themes were identified from interview: (1) selection of patients for research engagement, (2) strategies to alleviate the patient burden in implementing PER, (3) strategies to encourage patients for active expression, (4) benefits to attract patient engagement and (5) researcher's preparation. Conclusion: The cultural trait of 'reservedness' in Chinese culture hinders active expression by patients in the research engagement process. Researchers tend to recruit patients with specific characteristics and emphasize the importance of aligning benefits with patient values to motivate engagement. Addressing patient burden is crucial, and researchers should be well‐prepared before PER. These findings underscore the necessity of adopting culturally adapted strategies in PER to effectively address specific challenges. Patient or Public Contribution: The public participated in the interpretation of the interview results, enriching our understanding of the results. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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