Examining parents' perceptions of their children's autism and completion of genetic testing.
Though genetic testing is recommended for children diagnosed with autism spectrum disorder (ASD), both internal (e.g. parents' and providers' valuation of genetic testing) and external (e.g. insurance coverage) barriers exist, and exploration of these factors is required to close the gap between pro...
| Publicado en: | International Journal of Developmental Disabilities Vol. 71; no. 1; pp. 61 - 72 |
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| Autores principales: | , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Taylor & Francis Ltd
Feb2025
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=182505975&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 182505975 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 20473869 F2SP jtl: International Journal of Developmental Disabilities issn: 20473869 maglogo: N pubinfo: dt: Feb2025 vid: 71 iid: 1 pid: 377 pub: Taylor & Francis Ltd place: Philadelphia, Pennsylvania artinfo: ui: 182505975 162974738 182505975 182505975 10.1080/20473869.2023.2197310 182505975 ppf: 61 ppct: 11 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Examining parents' perceptions of their children's autism and completion of genetic testing. aug: au: Sakyi, Georgina J. Mire, Sarah S. Goin-Kochel, Robin P. Murali, Chaya N. Day, Susan X. affil: Department of Psychological, Health, and Learning Sciences, University of Houston, Houston, TX, USA sug: subj: Parents of Children with Disabilities Psychosocial Factors Parental Attitudes Evaluation Autism Spectrum Disorder Genetic Screening Children with Disabilities Psychosocial Factors Causal Attribution Health Beliefs Income Hope Human Male Female Adult Middle Age Factor Analysis Logistic Regression Decision Making, Family Chi Square Test Data Analysis Software Descriptive Statistics Adult: 19-44 years Middle Aged: 45-64 years Male Female ab: Though genetic testing is recommended for children diagnosed with autism spectrum disorder (ASD), both internal (e.g. parents' and providers' valuation of genetic testing) and external (e.g. insurance coverage) barriers exist, and exploration of these factors is required to close the gap between provider recommendations and parent follow-through. In a sample of 290 parents, we explored (a) how parents' ASD-related etiological beliefs and symptom attributions, as well as income, affected genetic testing completion; and (b) whether these factors influence parents' hopes or concerns about genetic testing. Principal component analysis (PCA) was used to investigate the factor structure of the ASD attribution measure used, which revealed a different factor structure from previous studies. Binomial logistic regression analyses indicated that parents were less likely to complete genetic testing when they believed their children's ASD was caused by their own personal attributes (e.g. their own stress, behaviors, attitudes, etc.). Parents' hopefulness about the utility of genetic testing increased when they observed more ASD symptoms. Results support the importance of understanding how parents' perceptions about ASD influence receptivity to and follow-through on genetic testing recommended by providers. Such information may enhance researchers' knowledge of parental decision-making regarding genetic testing and improve clinical care for ASD-affected families. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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