The potential of experience sampling methods in palliative care.
Background: Experience sampling methods typically involve multiple self-report assessments per day over consecutive days. Unlike traditional patient-reported outcome measures or interviews, such methods offer the possibility to capture the temporal fluctuations of experiences in daily environments,...
| Publicado en: | Palliative Medicine Vol. 39; no. 2; pp. 307 - 318 |
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| Autores principales: | , , , , , , , |
| Formato: | pictorial research tables/charts Journal Article |
| Publicado: |
Sage Publications Inc.
Feb2025
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=182536601&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 182536601 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 02692163 31I jtl: Palliative Medicine issn: 02692163 maglogo: Y pubinfo: dt: Feb2025 vid: 39 iid: 2 pid: 344 pub: Sage Publications Inc. place: Thousand Oaks, California artinfo: ui: 182536601 181841021 182536601 182536601 10.1177/02692163241306242 182536601 ppf: 307 ppct: 11 formats: tig: atl: The potential of experience sampling methods in palliative care. aug: au: Geeraerts, Joran Pivodic, Lara Nooijer, Kim de Rosquin, Lise Naert, Eline Crombez, Geert De Ridder, Mark Van den Block, Lieve affil: End-of-Life Care Research Group, Vrije Universiteit Brussel, Brussels, Belgium sug: subj: Breast Neoplasms Lung Neoplasms Cancer Patients Psychosocial Factors Palliative Care Treatment Outcomes Evaluation Patient Attitudes Sampling Methods Self Report Human Male Female Aged Disease Progression Environmental Monitoring Terminal Care Prospective Studies Pilot Studies Data Collection Quality of Life Attitude of Health Personnel Middle Age Funding Source Aged: 65+ years Middle Aged: 45-64 years Male Female ab: Background: Experience sampling methods typically involve multiple self-report assessments per day over consecutive days. Unlike traditional patient-reported outcome measures or interviews, such methods offer the possibility to capture the temporal fluctuations of experiences in daily environments, making them valuable for studying the daily lives of people with advanced illness. Yet, their use in palliative care research is limited. Aims: To introduce experience sampling methods to the field of palliative care as a valuable tool for studying the everyday experiences of people with advanced illness, and to present the findings of an experience sampling methods pilot study with people with advanced breast or advanced lung cancer. Evidence used to support the information presented: We draw on published health research using experience sampling methods. We present a newly developed experience sampling methods questionnaire (ESM-AC) and report pilot study findings on the feasibility and acceptability of experience sampling methods among people with advanced breast or lung cancer. Key learning points: Experience sampling methods hold potential to uncover the dynamics of everyday experiences of people with advanced illness. The methods offer considerable flexibility and options to answer a variety of research questions, but consideration is required regarding sampling protocols and participant burden. We showed appropriate feasibility and acceptable participant burden of the methods among people with advanced breast or advanced lung cancer. pubtype: Academic Journal doctype: pictorial research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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