Development and validation of a short form psychometric tool assessing the caregiving Challenge of Living with Cystic Fibrosis (CLCF-SF) in a child.
Objective: Caring for a child with cystic fibrosis (CF) is a rigorous daily commitment for caregivers and treatment burden is a major concern. We aimed to develop and validate a short form version of a 46-item tool assessing the Challenge of Living with Cystic Fibrosis (CLCF) for clinical or researc...
| Publicado en: | Psychology & Health Vol. 40; no. 3; pp. 410 - 433 |
|---|---|
| Autores principales: | , , , , , , |
| Formato: | questionnaire/scale research tables/charts Journal Article |
| Publicado: |
Taylor & Francis Ltd
Mar2025
|
| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=182907181&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 182907181 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 08870446 7WK jtl: Psychology & Health issn: 08870446 maglogo: N pubinfo: dt: Mar2025 vid: 40 iid: 3 pid: 377 pub: Taylor & Francis Ltd place: Philadelphia, Pennsylvania artinfo: ui: 182907181 164737336 182907181 182907181 10.1080/08870446.2023.2231489 182907181 ppf: 410 ppct: 23 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Development and validation of a short form psychometric tool assessing the caregiving Challenge of Living with Cystic Fibrosis (CLCF-SF) in a child. aug: au: McCray, Gareth Hope, Holly F. Glasscoe, Claire Hill, Jonathan Quittner, Alexandra Southern, Kevin W. Lancaster, Gillian A. affil: School of Medicine, Keele University, Keele, UK sug: subj: Cystic Fibrosis Therapy Instrument Construction Instrument Validation Psychometrics Caregivers Psychosocial Factors Caregiver Burden Evaluation Human Algorithms State-Trait Anxiety Inventory Clinical Assessment Tools Psychological Tests Questionnaires Scales Confidence Intervals Descriptive Statistics Funding Source ab: Objective: Caring for a child with cystic fibrosis (CF) is a rigorous daily commitment for caregivers and treatment burden is a major concern. We aimed to develop and validate a short form version of a 46-item tool assessing the Challenge of Living with Cystic Fibrosis (CLCF) for clinical or research use. Design: A novel genetic algorithm based on 'evolving' a subset of items from a pre-specified set of criteria, was applied to optimise the tool, using data from 135 families. Main outcome measures: Internal reliability and validity were assessed; the latter compared scores to validated tests of parental well-being, markers of treatment burden, and disease severity. Results: The 15-item CLCF-SF demonstrated very good internal consistency [Cronbach's alpha 0.82 (95%CI 0.78–0.87)]. Scores for convergent validity correlated with the Beck Depression Inventory (Rho = 0.48), State Trait Anxiety Inventory (STAI-State, Rho = 0.41; STAI-Trait, Rho = 0.43), Cystic Fibrosis Questionnaire-Revised, lung function (Rho = −0.37), caregiver treatment management (r = 0.48) and child treatment management (r = 0.45), and discriminated between unwell and well children with CF (Mean Difference 5.5, 95%CI 2.5–8.5, p < 0.001), and recent or no hospital admission (MD 3.6, 95%CI 0.25–6.95, p = 0.039). Conclusion: The CLCF-SF provides a robust 15-item tool for assessing the challenge of living with a child with CF. pubtype: Academic Journal doctype: questionnaire/scale research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
|---|