Supporting the Advancement of a National Agenda for Pediatric Healthcare Reform: A multi-year Evaluation of a Leadership Education in Neurodevelopmental and Related Disabilities Program.
Objectives: To evaluate the implementation and sustainability of the effect of a 1-year Leadership in Education for Neurodevelopmental and related Disabilities (LEND) program in a southeastern state, and to examine its impact on advancing the Maternal Child Health Bureau's (MCHB) Blueprint for Chang...
| Publicado en: | Maternal & Child Health Journal Vol. 29; no. 2; pp. 205 - 217 |
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| Autores principales: | , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Springer Nature
Feb2025
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=182974938&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 182974938 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 10927875 N9J jtl: Maternal & Child Health Journal issn: 10927875 maglogo: N pubinfo: dt: Feb2025 vid: 29 iid: 2 pid: 237 pub: Springer Nature place: New York, New York artinfo: ui: 182974938 182379971 182974938 182974938 10.1007/s10995-025-04040-7 182974938 ppf: 205 ppct: 12 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Supporting the Advancement of a National Agenda for Pediatric Healthcare Reform: A multi-year Evaluation of a Leadership Education in Neurodevelopmental and Related Disabilities Program. aug: au: Koob, Caitlin Griffin, Sarah F. Stuenkel, Mackenzie Cartmell, Kathleen B. Sease, Kerry affil: https://ror.org/037s24f05 Department of Public Health Sciences, Clemson University, 501 Edwards Hall, 29634, Clemson, SC, USA sug: subj: Program Implementation Evaluation Program Evaluation Evaluation Leadership Education Mental Disorders Diagnosed in Childhood Southeastern United States Maternal-Child Health Evaluation Health Care Reform Pediatric Care Health Priorities Outcomes of Education Human Southeastern United States Interviews Videoconferencing Thematic Analysis Methods Communication Interns and Residents Psychosocial Factors Confidence Collaboration Family Centered Care Time Financial Management Needs Assessment Wellness Quality of Life Health Services Accessibility Qualitative Studies Retrospective Design Prospective Studies Convenience Sample Data Analysis Software Health Personnel Parental Attitudes Social Determinants of Health Patient Advocacy Child Development ab: Objectives: To evaluate the implementation and sustainability of the effect of a 1-year Leadership in Education for Neurodevelopmental and related Disabilities (LEND) program in a southeastern state, and to examine its impact on advancing the Maternal Child Health Bureau's (MCHB) Blueprint for Change—a national agenda for pediatric healthcare reform. Methods: This study applies the Exploration, Preparation, Implementation, and Sustainment (EPIS) framework to rigorously evaluate LEND implementation and impact between 2018 and 2022. In-depth interviews (N = 24) were conducted among long-term (1-year) LEND trainees, via Zoom, in a southeastern state. A hybrid approach of deductive and inductive thematic analysis was conducted to identify emergent patterns and themes from trainees' experiences, related to the EPIS constructs and national priorities. Results: Exploration and Preparation. Trainees identified insights from multidisciplinary discussions and family panels as key facilitators to their development. Implementation. Trainees reported growth in confidence and communication and improving their service delivery, including implementation of a collaborative approach to patient care, family-centered care, and occasionally facilitating their obtainment of leadership positions. Trainees also reported systemic barriers to implementation, including time and financial constraints. Sustainability. Trainees identify their experienced shift in mindset and statewide connections as drivers for sustained change, with suggestions for follow-up events and networking opportunities to enhance the effect of LEND training. Conclusions for Practice: These results may inform LEND objectives to enhance the statewide network and to advance a national framework for prioritizing family well-being and quality of life and access to services. Significance: Leadership in Education for Neurodevelopmental and Related Disabilities (LEND) is a graduate-level, interdisciplinary training program, with 60 sites funded by the Maternal Child Health Bureau nationwide. LEND is well-positioned to advance the Blueprint for Change, a national agenda for pediatric healthcare reform among children with special healthcare needs. This study's LEND program has not been rigorously evaluated since its inception in 2011. This study seeks to evaluate the perceived sustainability of the effect of LEND training and examine its congruence with the priority areas of the Blueprint for Change, within the Exploration, Preparation, Implementation, and Sustainment framework. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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