A Window into the Use of Post-diagnostic Services for Autism and Parents' Perspective on the Quality of Early Childhood Services Trajectory in a Canadian Province.
The pathway for post-diagnostic services for autism tends to be complex, heterogeneous, and fraught with delays. This situation has repercussions for families' experience with care systems, the quality of early interventions, and family adjustment. To date, studies of parents' point of view on autis...
| Publicado en: | Journal of Autism & Developmental Disorders Vol. 55; no. 3; pp. 955 - 969 |
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| Autores principales: | , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Springer Nature
Mar2025
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=183072072&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 183072072 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 01623257 AUT jtl: Journal of Autism & Developmental Disorders issn: 01623257 maglogo: N pubinfo: dt: Mar2025 vid: 55 iid: 3 pid: 237 pub: Springer Nature place: New York, New York artinfo: ui: 183072072 175480679 183072072 183072072 10.1007/s10803-024-06265-x 183072072 ppf: 955 ppct: 14 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: A Window into the Use of Post-diagnostic Services for Autism and Parents' Perspective on the Quality of Early Childhood Services Trajectory in a Canadian Province. aug: au: Rivard, Mélina Mello, Catherine Patel, Shaneha Morin, Marjorie Morin, Diane affil: https://ror.org/002rjbv21 Département de Psychologie, succursale Centre-ville, Université du Québec à Montréal, C.P. 8888, H3C 3P8, Montréal, Québec, Canada sug: subj: Autism Spectrum Disorder Therapy Parental Attitudes Quality of Health Care Evaluation Early Childhood Intervention Social Work Service Quebec Hospitals, Public Quebec Human Quebec Parents Empathy Professional-Family Relations Child Funding Source Scales Child: 6-12 years ab: The pathway for post-diagnostic services for autism tends to be complex, heterogeneous, and fraught with delays. This situation has repercussions for families' experience with care systems, the quality of early interventions, and family adjustment. To date, studies of parents' point of view on autism services have predominantly focused on the diagnostic phase of the services trajectory. The goal of the present study was to investigate the perspective of parents on autism early childhood services within a public healthcare and social services system in a Canadian province (Québec). Participants were 91 parents who completed a structured framework for the evaluation of the quality of services trajectories, the Evaluation of the services Trajectory in Autism by Parents (ETAP; Mello et al., in Research in Developmental Disabilities 133, 2023). Approximately three-quarters of families received interim services (e.g., punctual speech therapy interventions) for which they had overall neutral-to-positive appraisals but viewed as having comparably low validity and continuity. Although all children diagnosed with autism are entitled to receive early behavioral intervention (EBI) dispensed by the public health and social services system, approximately a quarter of families did not receive this service. Families who received EBI evaluated this service positively on all ETAP dimensions. The empathy (i.e., parent-provider relationships) dimension was rated highest for both interim and EBI services. Some systemic, family, and child-related factors were associated with the perceived quality of services for both interim and early childhood services. Our results emphasize the need for services for children and families as soon as possible, both during assessment and after diagnosis. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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