Family Care Partners and Paid Caregivers: National Estimates of Role-Sharing in Home Care.

Background and Objectives We describe "role-sharing" in home care, defined as family care partners and paid caregivers assisting with the same task(s). Research Design and Methods We studied 440 participants in the 2015 National Health and Aging Trends Study receiving paid help with self-care, mobil...

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Published in:Gerontologist Vol. 65; no. 2; pp. 1 - 9
Main Authors: Fabius, Chanee D, Gallo, Joseph J, Burgdorf, JuliaG, Samus, Quincy M, Skehan, Maureen, Stockwell, Ian, Wolff, Jennifer L
Format: Article
Published: Oxford University Press / USA Feb2025
Subjects:
Online Access:View this record in EBSCOhost
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      dt: Feb2025
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      pub: Oxford University Press / USA
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        10.1093/geront/gnae177
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        atl: Family Care Partners and Paid Caregivers: National Estimates of Role-Sharing in Home Care.
      aug:
        au:
          Fabius, Chanee D
          Gallo, Joseph J
          Burgdorf, JuliaG
          Samus, Quincy M
          Skehan, Maureen
          Stockwell, Ian
          Wolff, Jennifer L
        affil:
          Department of Health Policy and Management, Bloomberg School of Public Health, Johns Hopkins University, Baltimore, Maryland, USA
          Department of Mental Health, Bloomberg School of Public Health, Johns Hopkins University, Baltimore, Maryland, USA
          Center for Home Care Policy and Research, VNS Health, New York, New York, USA
          School of Nursing, Johns Hopkins University, Baltimore, Maryland, USA
          Department of Epidemiology, Bloomberg School of Public Health, Johns Hopkins University, Baltimore, Maryland, USA
          Department of Information Systems, University of Maryland Baltimore County, Baltimore, Maryland, USA
      su:
        Families & psychology
        Home care services
        Task performance
        Patient care
        Wages
        Psychology of caregivers
        Medicaid
        Activities of daily living
        Research funding
        Descriptive statistics
        Odds ratio
        Confidence intervals
        Dementia patients
      sug:
        subj:
          Families & psychology
          Home care services
          Task performance
          Patient care
          Wages
          Psychology of caregivers
          Medicaid
          Activities of daily living
          Services for the Elderly and Persons with Disabilities
          Home Health Care Services
          Offices of all other health practitioners
          Offices of All Other Miscellaneous Health Practitioners
          Administration of Human Resource Programs (except Education, Public Health, and Veterans' Affairs Programs)
          Research funding
          Descriptive statistics
          Odds ratio
          Confidence intervals
          Dementia patients
      keyword:
        Dementia
        Family caregiving
        Paid caregiving
        Shared care
        Dementia
        Family caregiving
        Paid caregiving
        Shared care
      ab: Background and Objectives We describe "role-sharing" in home care, defined as family care partners and paid caregivers assisting with the same task(s). Research Design and Methods We studied 440 participants in the 2015 National Health and Aging Trends Study receiving paid help with self-care, mobility, or medical care. We describe patterns in receiving paid help only, help from care partners only, and role-sharing. We examine whether sole reliance on paid help or role-sharing differs by Medicaid-enrollment and dementia status. Results Half (52.9%) of care networks involved role-sharing. Care networks involving role-sharing more often occurred among older adults with dementia (48.7% vs 25.6%, p  < .001) and less often for those who were Medicaid-enrolled (32.1% vs 49.4%, p  < .01). Those living with dementia more often experienced role-sharing in eating (odds ratio [OR] 3.9 [95% confidence interval {CI} 1.20, 8.50]), bathing (OR 2.7, [95% CI 1.50, 4.96]), dressing (OR 2.1 [95% CI 1.14, 3.86]), toileting (OR 2.9 [95% CI 1.23, 6.74]), and indoor mobility (OR 2.8 [95% CI 1.42, 5.56]), and less often received help solely from paid helpers with medication administration (OR 0.24, [95% CI.12,.46]). Medicaid-enrollees more often received paid help only in dressing (OR 2.0 [95% CI 1.12, 3.74]), outdoor (OR 2.4 [95% CI 1.28, 4.36]), and indoor mobility (OR 4.3 [95% CI 2.41, 7.62]), and with doctor visits (OR 2.8 [95% CI 1.29, 5.94]). Discussion and Implications Role-sharing is common, especially among older adults living with dementia who are not Medicaid-enrolled. Strategies supporting information sharing and collaboration in home-based care merit investigation.
      pubtype: Academic Journal
      doctype: Article
      src: R
    language: English
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