Stigma among Vietnamese parents of children with autism spectrum disorder.

AbstractObjectivesMethodsResultsConclusionsThis cross-sectional descriptive study aimed to describe perceived stigma, affiliate stigma, enacted stigma, challenging behavior, caregiving burden, and social support among parents of children with autism spectrum disorder (ASD) in Hanoi, Vietnam.Utilizin...

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Publicado en:International Journal of Developmental Disabilities pp. 1 - 15
Autores principales: Khanh, Thi Loan, Mai, Anh Thi Lan, Duong, Thuy Linh
Formato: Journal Article
Publicado: Taylor & Francis Ltd Mar2025
Acceso en línea:Ver este registro en EBSCOhost
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      jtl: International Journal of Developmental Disabilities
      issn: 20473869
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      dt: Mar2025
      pid: 377
      pub: Taylor & Francis Ltd
      place: Philadelphia, Pennsylvania
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        10.1080/20473869.2025.2477621
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        atl: Stigma among Vietnamese parents of children with autism spectrum disorder.
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          Khanh, Thi Loan
          Mai, Anh Thi Lan
          Duong, Thuy Linh
        affil: Faculty of Nursing and Midwifery, Hanoi Medical University
      sug:
      ab: AbstractObjectivesMethodsResultsConclusionsThis cross-sectional descriptive study aimed to describe perceived stigma, affiliate stigma, enacted stigma, challenging behavior, caregiving burden, and social support among parents of children with autism spectrum disorder (ASD) in Hanoi, Vietnam.Utilizing a stratified sampling approach, the study surveyed 846 parents at the National Children’s Hospital and five special education centers for children with disabilities from February to October 2023 using structured self-administered questionnaires. Data were analyzed with descriptive statistics in SPSS 20.0.Parents of children with ASD experienced low to moderate level of perceived stigma (1.24 ± 0.58), moderate levels of affiliate stigma and enacted stigma (2.11 ± 0.50 and, 1.88 ± 0.72, respectively). Most parents reported medium or high levels of social support (98.2%). Notably, 98.1% of children exhibited at least one challenging behavioral problem, with inappropriate vocalizations and stereotypical behavior being the most common behaviors. Additionally, a substantial number of parents faced severe caregiving burdens (55.8%).This study highlights the stigma experienced by parents of children with ASD, significant caregiving burdens and children’s challenging behaviors. Healthcare providers can support parents by counseling on personal space, work-life balance, emotional regulation, coping skills with stigma and effectively addressing behavioral challenges, ultimately enhancing support for families of children with ASD.
      pubtype: Academic Journal
      doctype: Journal Article
      ougenre: Article
    language: English
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