Navigating the dual role of physician and clinician investigator in end-of-life research.

The challenges of recruiting participants for end-of-life (EOL) research are multifaceted. The Last Gift study at the University of California San Diego, an observational study for people with HIV (PWH) with terminal illness, appeals to the altruism of potential participants and community of allied...

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Publicado en:AIDS Care Vol. 37; no. 4; pp. 618 - 626
Autores principales: Deiss, Robert, Gianella, Sara, Dullano, Cheryl, Solso, Stephanie, Little, Susan J., Kaytes, Andy, Taylor, Jeff, Riggs, Patricia K., Hastie, Elizabeth, Smith, Davey, Dubé, Karine
Formato: tables/charts Journal Article
Publicado: Taylor & Francis Ltd Apr2025
Acceso en línea:Ver este registro en EBSCOhost
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        10.1080/09540121.2025.2458629
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        atl: Navigating the dual role of physician and clinician investigator in end-of-life research.
      aug:
        au:
          Deiss, Robert
          Gianella, Sara
          Dullano, Cheryl
          Solso, Stephanie
          Little, Susan J.
          Kaytes, Andy
          Taylor, Jeff
          Riggs, Patricia K.
          Hastie, Elizabeth
          Smith, Davey
          Dubé, Karine
        affil: Division of Infectious Diseases and Global Public Health, School of Medicine, University of California San Diego (UCSD), San Diego, CA, USA
      sug:
        subj:
          Physician's Role Evaluation
          Research Subject Recruitment Ethical Issues
          Palliative Care
          HIV-Positive Persons
          Terminally Ill Patients
          Altruism
          Research Ethics
          California
          Record Review
          Referral and Consultation
          Physician Self-Referral
          Social Determinants of Health
      ab: The challenges of recruiting participants for end-of-life (EOL) research are multifaceted. The Last Gift study at the University of California San Diego, an observational study for people with HIV (PWH) with terminal illness, appeals to the altruism of potential participants and community of allied health providers. Involvement of the latter group highlights a potential ethical conundrum of a "dual role", as primary care providers (PCPs) navigate between clinical responsibilities to their patients, along with opportunities to discuss clinical research. To explore this conundrum and better understand study recruitment dynamics of the Last Gift study, we analyzed screening and enrollment data for a 12-month period (2022–2023). We found that PCPs can play an important role in the recruitment of PWH into EOL research, as having PCPs discuss the study with potential participants yielded more successful enrollments than contact by the study team alone. Our manuscript proposes considerations to mitigate dual role conflicts, including ensuring ethical awareness, prioritizing clinical care and offering strategies to involve PCPs in recruitment without causing unnecessary burden or coercion. These insights aim to guide similar EOL research efforts, emphasizing the need for balanced, ethical recruitment processes in the sensitive context of terminal illness.
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    language: English
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