Navigating the dual role of physician and clinician investigator in end-of-life research.
The challenges of recruiting participants for end-of-life (EOL) research are multifaceted. The Last Gift study at the University of California San Diego, an observational study for people with HIV (PWH) with terminal illness, appeals to the altruism of potential participants and community of allied...
| Publicado en: | AIDS Care Vol. 37; no. 4; pp. 618 - 626 |
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| Autores principales: | , , , , , , , , , , |
| Formato: | tables/charts Journal Article |
| Publicado: |
Taylor & Francis Ltd
Apr2025
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=184138439&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 184138439 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 09540121 AAE jtl: AIDS Care issn: 09540121 maglogo: N pubinfo: dt: Apr2025 vid: 37 iid: 4 pid: 377 pub: Taylor & Francis Ltd place: Philadelphia, Pennsylvania artinfo: ui: 184138439 182633614 184138439 184138439 10.1080/09540121.2025.2458629 184138439 ppf: 618 ppct: 8 formats: tig: atl: Navigating the dual role of physician and clinician investigator in end-of-life research. aug: au: Deiss, Robert Gianella, Sara Dullano, Cheryl Solso, Stephanie Little, Susan J. Kaytes, Andy Taylor, Jeff Riggs, Patricia K. Hastie, Elizabeth Smith, Davey Dubé, Karine affil: Division of Infectious Diseases and Global Public Health, School of Medicine, University of California San Diego (UCSD), San Diego, CA, USA sug: subj: Physician's Role Evaluation Research Subject Recruitment Ethical Issues Palliative Care HIV-Positive Persons Terminally Ill Patients Altruism Research Ethics California Record Review Referral and Consultation Physician Self-Referral Social Determinants of Health ab: The challenges of recruiting participants for end-of-life (EOL) research are multifaceted. The Last Gift study at the University of California San Diego, an observational study for people with HIV (PWH) with terminal illness, appeals to the altruism of potential participants and community of allied health providers. Involvement of the latter group highlights a potential ethical conundrum of a "dual role", as primary care providers (PCPs) navigate between clinical responsibilities to their patients, along with opportunities to discuss clinical research. To explore this conundrum and better understand study recruitment dynamics of the Last Gift study, we analyzed screening and enrollment data for a 12-month period (2022–2023). We found that PCPs can play an important role in the recruitment of PWH into EOL research, as having PCPs discuss the study with potential participants yielded more successful enrollments than contact by the study team alone. Our manuscript proposes considerations to mitigate dual role conflicts, including ensuring ethical awareness, prioritizing clinical care and offering strategies to involve PCPs in recruitment without causing unnecessary burden or coercion. These insights aim to guide similar EOL research efforts, emphasizing the need for balanced, ethical recruitment processes in the sensitive context of terminal illness. pubtype: Academic Journal doctype: tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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