The lived experience of hearing loss – an individualised responsibility.

Objective: This study aimed to provide a conceptual model to understand what typifies the lived experience of hearing loss. Design: A grounded theory informed study of adults with hearing loss (n = 46) who participated in individual interviews. The data were analysed in line with the constant compar...

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Publicado en:International Journal of Audiology Vol. 64; no. 4; pp. 365 - 374
Autores principales: Pryce, Helen, Smith, Sian, Burns O'Connell, Georgie, Hussain, Saira, Straus, Jean, Shaw, Rachel
Formato: research tables/charts Journal Article
Publicado: Taylor & Francis Ltd Apr2025
Acceso en línea:Ver este registro en EBSCOhost
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      jtl: International Journal of Audiology
      issn: 14992027
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      dt: Apr2025
      vid: 64
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      pub: Taylor & Francis Ltd
      place: Philadelphia, Pennsylvania
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        10.1080/14992027.2024.2351037
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        atl: The lived experience of hearing loss – an individualised responsibility.
      aug:
        au:
          Pryce, Helen
          Smith, Sian
          Burns O'Connell, Georgie
          Hussain, Saira
          Straus, Jean
          Shaw, Rachel
        affil: Department of Audiology, College of Health and Life Sciences, Aston University, Birmingham, UK
      sug:
        subj:
          Hearing Disorders Psychosocial Factors
          Patient Attitudes Evaluation
          Individualized Medicine
          Models, Theoretical
          Human
          Funding Source
          Grounded Theory
          Descriptive Statistics
          Interviews
          Consumer Participation
          Adult
          Adolescence
          Middle Age
          Aged
          United Kingdom
          Urban Areas
          Suburban Areas
          Rural Areas
          Communities
          Minority Groups
          Ethnic Groups
          Residential Care
          Support, Social
          Patient Centered Care
          Coping
          Thematic Analysis
          Interview Guides
          Adult: 19-44 years
          Adolescent: 13-18 years
          Middle Aged: 45-64 years
          Aged: 65+ years
      ab: Objective: This study aimed to provide a conceptual model to understand what typifies the lived experience of hearing loss. Design: A grounded theory informed study of adults with hearing loss (n = 46) who participated in individual interviews. The data were analysed in line with the constant comparative approach of grounded theory. A substantial patient and public engagement (PPIE) strategy underpinned decisions and processes throughout. Study sample: Adults were recruited from age bands (16–29; 30–49;50–79 and 80 upwards) to provide different lived experience. We recruited individuals from across the UK including urban, sub-urban and rural communities and included a typical constituency of each location including black and minority ethnic participants. Our PPIE groups included adults often marginalised in research including South Asian community groups, adults in residential care and those with additional disabilities. Results: We identified the consistent features of the lived experience with hearing loss, as the individualised responsibility that hearing loss confers. These are an individual auditory lifeworld; social comparison and social support; individual and patient-centred care and individual agency and capability. Conclusions: This work provides new insights for those practising audiology and highlights the importance of building social support systems through implementation of family and peer support approaches.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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