'We Don't Have to Prove to People How We're Feeling': Understanding the Role of Peer Support Groups in Countering Epistemic Injustices in Long COVID at a US Centre.
Background: Long COVID, an infection‐associated chronic condition characterised by new or worsening signs or symptoms for more than 3 months after a SARS‐CoV‐2 infection, is a chronic debilitating illness which remains poorly understood. Epistemic injustice in healthcare describes the unique harms o...
| Publicado en: | Health Expectations Vol. 28; no. 2; pp. 1 - 14 |
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| Autores principales: | , , , |
| Formato: | pictorial research tables/charts Journal Article |
| Publicado: |
Wiley-Blackwell
Apr2025
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=184679900&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 184679900 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 13696513 EVY jtl: Health Expectations issn: 13696513 maglogo: Y pubinfo: dt: Apr2025 vid: 28 iid: 2 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 184679900 184679900 184679900 10.1111/hex.70266 184679900 ppf: 1 ppct: 13 formats: fmt: – @attributes: type: T – @attributes: type: C – @attributes: type: P tig: atl: 'We Don't Have to Prove to People How We're Feeling': Understanding the Role of Peer Support Groups in Countering Epistemic Injustices in Long COVID at a US Centre. aug: au: Sarma, Nandini Gage, Sam Hough, Catherine L. Hope, Aluko A. affil: Department of Medicine, University of California Davis School of Medicine, Division of Pulmonary, Critical Care, and Sleep Medicine, Sacramento California,, USA sug: subj: Peer Group United States Support, Psychosocial United States Post-Acute COVID-19 Syndrome United States Social Justice In Adulthood Life Experiences Psychotherapy, Group Human United States Qualitative Studies Semi-Structured Interview Academic Medical Centers United States Thematic Analysis Patient Centered Care Tertiary Health Care Data Analysis Software Adult Adult: 19-44 years ab: Background: Long COVID, an infection‐associated chronic condition characterised by new or worsening signs or symptoms for more than 3 months after a SARS‐CoV‐2 infection, is a chronic debilitating illness which remains poorly understood. Epistemic injustice in healthcare describes the unique harms or wrongs done to a person in their capacity to share and acquire knowledge about their illness. Although the concept of epistemic injustice has been described in other chronic conditions, few studies have explored these concepts in Long COVID. Objectives: (1) To understand the lived experience of epistemic injustice in adults with Long COVID who were participating in a peer support group intervention and (2) to describe the potential impact of the support group on these experiences in participants. Methods: Qualitative analysis utilising inductive analysis of semi‐structured individual interviews of patients with Long COVID who participated in a peer support group intervention at an academic medical centre in Oregon, USA. Results: We identified three themes that captured the lived experiences of epistemic injustice in Long COVID support group participants: (1) dismissal and disregard; (2) episodic and unpredictable symptoms and impairment, and (3) knowledge and interpretation practices. We also found that the peer support potentially impacted these experiences of epistemic injustice through (1) recognition and validation; (2) solidarity and community, and (3) information exchange and expectation setting. Conclusions: Long COVID patients are at risk of experiencing epistemic injustice in seeking healthcare for this complex condition. Peer support programmes may be one approach to help counter these experiences and should be further studied as a complex intervention for improving patient‐centred care in Long COVID. pubtype: Academic Journal doctype: pictorial research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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